What continues to give me hope is not just kinesia paradoxica but those miraculous whole days where people with Parkinson’s disease lose all their stiffness, viscosity and shakiness and inexplicably return to how they once were before the malady emerged
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@ajlees
Indeed. The greatest source of hope for me is the realization that symptoms, a disease, or any lack thereof, don’t have to determine my own beliefs or capabilities. Even a MFer like PD can be part of our destiny, not an obstacle to.
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@ajlees
I had that happen to me in the middle of the night a couple of years ago. I stayed up for a couple of hours. I kept asking myself "was I dreaming". I wasn't. It was great. It's never happened since
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@ajlees
I see this when walking and listening to certain songs. I’ll be tired and my right foot is dragging and I’m just not walking smoothly. A song comes on my iPod with a strong beat that matches my old pace and I find myself walking very close to normal. I made a playlist for walking
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