RTHM connects you with a digital care team specializing in Long COVID and ME/CFS that provides access to a range of therapies based on the latest research.
What would you do with more better days? In the coming weeks, we’re launching RTHM Direct—an online treatment platform connecting
#pwLC
&
#pwME
to low-risk prescriptions. Improve brain fog, boost energy & reduce pain to shorten the path to better health. 🔗
Research from
@resiapretorius
shows that there is an overload of inflammatory molecules trapped inside
#microclots
in patients with
#LongCOVID
. This blockage reduces the delivery of oxygen to tissues and can cause debilitating symptoms.
#teamclots
#pwLC
Should you pick Novavax’s COVID-19 shot over mRNA options? An Italian study on Novavax's COVID-19 vaccine found that after 4 months, the vaccine was 55% effective at preventing symptomatic SARS-CoV-2 infection & 28% at preventing infection altogether.
How do
#microclots
affect patients with
#LongCOVID
?
They block delicate blood vessels and stop oxygen from getting to where it needs to go, causing everything from shortness of breath and organ damage to brain fog and debilitating fatigue.
#pwLC
Many
#LongCOVID
patients are also being diagnosed with
#MCAS
(Mast Cell Activation Syndrome), a disorder that triggers widespread inflammation in the body. Researchers believe that COVID-19 increases the activation of mast cells.
#TreatLongCOVID
#pwLC
When
#microclots
form in the body, they can cause damage to delicate blood vessels through inflammation, which leads to abnormal fibrin and platelet activity. This leads to small, strange clots that block oxygen transport to tissues throughout the body.
Researchers found that of 100 patients with "long COVID" symptoms, more than half had signs of small-airway disease on CT scans. And people who'd been mildly ill at home were just as affected as those who'd been hospitalized.
@HealthDayTweets
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome affects over 20 million people worldwide.
FACTS:
🔹The exact cause is unknown
🔹Over 80% of cases stem from previous infections
🔹70% of patients are unable to work
🔹25% of patients are homebound
#SevereME
#MECFS
#pwME
#Microclots
can block small vessels, reducing oxygen delivery to tissues in
#pwLC
. This can create hypoxia & without the oxygen the tissues need, debilitating symptoms can occur! Microclots can also increase the risk of stroke and heart attacks.
There is emerging evidence that patients with
#MECFS
suffer from visual abnormalities.
Symptoms include:
👀blurred vision
🫣sensitivity to light
👁️eye pain
😵💫trouble focusing
Are you a
#pwME
experiencing neuro-ophthalmologic disorders?
#SevereME
How do
#microclots
affect patients with
#LongCOVID
?
They block delicate blood vessels and stop oxygen from getting to where it needs to go, causing everything from shortness of breath and organ damage to brain fog and debilitating fatigue.
🚨
#pwLC
Many Long COVID patients are also being diagnosed with
#MCAS
(Mast Cell Activation Syndrome), a disorder that triggers widespread inflammation in the body. Researchers believe that COVID-19 increases activation of mast cells in
#LongCovid
patients.
#MECFS
&
#LongCOVID
patients are also being diagnosed with
#MCAS
(Mast Cell Activation Syndrome), a disorder that triggers widespread inflammation in the body. Researchers believe that COVID-19 increases the activation of mast cells.
#SevereME
#pwLC
#pwME
🩸
#Microclots
can cause severe symptoms & increase the risk of stroke and heart attacks in
#LongCOVID
patients.
🥼Research from
@resiapretorius
shows that a combo of antiplatelet and anticoagulant therapy provides significant improvement.
#TeamClots
At RTHM, you benefit from the latest medical research!
Our team is attending
@Invest_in_ME
, 1 of the largest annual int'l conferences for researchers, clinicians, patients, and carers to learn about the newest findings and clinical developments in
#MECFS
!
#pwME
#BRMEC12
#IIMEC15
#PEM
is not the same as fatigue or exhaustion. Many patients describe it as hitting a wall. The body stops functioning!
Top 3 Symptoms:
1⃣debilitating fatigue
2⃣muscle weakness
3⃣cognitive dysfunction
What are your symptoms?
#pwME
#pwLC
#SevereME
Mast cells are white blood cells that play an important role in a healthy immune function. When these cells are triggered it can affect multiple systems throughout the body, causing symptoms similar to those seen during an allergic reaction.
#MCAS
#pwLC
What is
#Dysautonomia
?
Dysautonomia refers to a group of disorders caused by problems with your autonomic nervous system (ANS). Your ANS controls your body’s automatic functions, like heart rate, digestion, blood pressure, kidney function, and more.
#DysautonomiaAwarenessMonth
Novavax uses the protein + adjuvant vaccine technology used for decades in other vaccines. In clinical trials, Novavax generally had lower rates of side effects compared to Pfizer or Moderna’s mRNA vaccines and appears to be more effective in preventing symptomatic infection.
Vaccinated individuals who have previously had COVID-19 have a 50% lower chance of re-infection with COVID-19. Novavax may be a good choice if you want fewer side effects and longer-term protection from symptomatic infection.
📢We are excited to announce the launch of the RTHM GPCR+ Autoantibody Panel!
Autoantibodies can disrupt normal function, resulting in many of the symptoms those with
#LongCOVID
,
#MECFS
, and
#Dysautonomia
live with every day.
Order today:
Growing research is showing that many
#pwLC
&
#pwME
have or receive a diagnosis of 1 or more connective tissue or structural disorders that are contributing to their symptoms. In many cases, these underlying conditions go undiagnosed for years.
#MECFS
&
#LongCOVID
patients are also being diagnosed with Mast Cell Activation Syndrome, a disorder that triggers widespread inflammation. Researchers believe that COVID-19 can increase the activation of mast cells. Are you a
#pwLC
&
#pwME
with
#MCAS
?
In this Long COVID study,
#pwLC
showed elevated antibodies against Epstein-Barr virus (suggesting viral reactivations), lower cortisol levels (hinting at HPA axis dysregulation), and different levels of specific immune cell subsets.
@VirusesImmunity
Long COVID has altered the lives of millions of people.
Today is the 1st International
#LongCOVIDAwarenessDay
. We encourage patients to share their stories to create more awareness of this debilitating disease.
How has your life been affected by
#LongCOVID
?
#pwLC
Studies show that patients are experiencing unusual
#microclots
in their blood that prevent oxygen transport and contribute to headaches in
#LongCOVID
patients. Trial treatments are finding results with anticoagulation and antiplatelet therapies.
RTHM is starting to offer this autoantibody testing next month! The Targeted Receptor Autoantibody Profile measures antibodies that bind to G-protein coupled receptors (GPCRs) that regulate heart rate, nerve signaling, blood flow, and more.
"How much of the public understands
#LongCovid
? Not sure. But given that 25 million people or so have been affected by it, they are certainly aware of it, as are their families, and I would also say their employers!”
@flanagan_RUSKmd
What is post-exertional malaise?
#PEM
is the often delayed worsening of symptoms after minimal physical or mental activity. These symptoms can include debilitating fatigue, body pain, muscle weakness, and cognitive dysfunction.
#pwME
#MECFS
#SevereME
New research connects COVID-19 with a type of cell death called ferroptosis. 🧬🦠 They found that a protein in the virus triggers ferroptosis by weakening the body's natural defenses. 🔬Future studies will explore its effects on long-term symptoms.
#pwLC
👇
New
#LongCOVID
insights reveal the role of endothelial inflammation in symptom persistence. Research led by
@doctorasadkhan
and the team highlights the need for patient vigilance and tailored interventions. Hope is on the horizon for
#pwLC
#COVIDIsNotOver
🚨Many
#pwLC
&
#pwME
are also diagnosed with
#MCAS
!
Mast cells can release chemicals that may cause anaphylaxis symptoms such as hives, swelling, low blood pressure, difficulty breathing, and severe diarrhea.
Do you suffer from these symptoms?👇😰
"Don't just count the number of deaths, the number of infections, the number of hospital admissions; count the chronic illness and disability generated by this virus!"
Don't miss
@Dr2NisreenAlwan
's compelling
@TEDx
talk on
#LongCOVID
.
#CountLongCOVID
Blood clotting is an important process that prevents excessive bleeding. Blood clots are made of platelets & fibrin. Platelets are small colorless fragments of cells that your bone marrow makes. Fibrin is a blood protein. Platelets and fibrin work together to seal injured areas.
Can you imagine getting dizzy and feeling like your heart is pounding out of your chest every time you stand up?
Unfortunately, for many people with postural orthostatic tachycardia syndrome (
#POTS
), this is exactly how they live every day!
Despite affecting more than 70 million people worldwide, most people have never heard of
#dysautonomia
. With the arrival of the COVID pandemic &
#LongCOVID
crisis, it's now receiving more awareness as it becomes a major condition experienced by
#pwLC
!
Research shows that many
#pwME
and
#pwLC
are also being diagnosed with one or more connective tissue or structural disorders. In many cases, these underlying conditions go undiagnosed for years.
#Fibro
#EDS
Read more if you suspect you could have one👇
Mast cells play a crucial role in our immune response.
#MCAS
is a disorder that causes them to release an overabundance of mediators that can trigger widespread inflammation. Researchers found that it can play a role in many conditions:
#LongCOVID
,
#POTS
,
#MECFS
, and
#EDS
.
When the 👀 and the 🧠 aren't working together correctly, it can cause headaches, fatigue, or
#PEM
crashes.
Neuro-ophthalmologic disorders affect the relationship between the eyes, optic nerves, and the brain, leading to visual symptoms & abnormalities.
@StanfordMed
Interestingly, some antihistamines, such as famotidine (Pepcid) and diphenhydramine (Benadryl), have shown promise in treating Long COVID. While these drugs are typically used for allergies and heartburn, they may also help reduce inflammation and other symptoms.
Study reveals
#LongCovid
can be split into inflammatory and non-inflammatory types. Ongoing neutrophil activity, B cell alterations, & autoreactivity were found in
#pwLC
a year post-COVID. This could aid in targeted treatments and research. Full study🔬🔗👇
#Microclots
are tiny blood clots that could explain
#LongCOVID
symptoms!
They block delicate blood vessels and deprive oxygen of getting to its destination causing patients brain fog, organ damage, and debilitating fatigue.
Learn more 🔗
#TeamClots
🔍🔬New
#LongCOVID
study reveals immune dysregulation & disrupted tissue repair pathways as key factors. Findings offer hope for targeted treatments & validate patient experiences. This paves the way for future research & improved patient care for
#pwLC
.
Studies show that patients are experiencing unusual
#microclots
in their blood that prevent oxygen transport and contribute to headaches in
#LongCovid
patients. Research is looking into anticoagulation and antiplatelet therapy as treatments.
#teamclots
👁️Neuro-ophthalmologic disorders can affect the intricate relationship between the eyes, optic nerves, & the brain, leading to various visual symptoms and eye-related abnormalities resulting from many underlying conditions.
#LongCOVID
#MECFS
#EDS
#pwME
We have all had days where we work hard and push ourselves, but then we recover the next day. For those with
#PEM
, recovery isn’t that easy. Many describe it as hitting a wall! It's the cardinal symptom of
#MECFS
and is also being seen in
#LongCOVID
.
Until the pandemic began, many had never heard of ME/CFS, but the similarities of symptoms in
#LongCovid
and
#MECFS
are striking. One of our founders,
@jencurtinmd
is on this panel to discuss the relationship of these post-viral illnesses.
@MEActNet
@itsbodypolitic
#MEAction
&
@itsbodypolitic
will be hosting an Unrest Panel Discussion this Sunday, March 27th at 10am PT/ 1pm ET/ 6pm BST. We will discuss the relationship between
#LongCovid
&
#MyalgicE
from a clinical, patient, & societal perspective.
#pwME
Tickets:
Until the pandemic, many had never heard of
#MECFS
, a neurological disease that affects every system in the body and over 20 million people worldwide. The similarities of symptoms in
#LongCOVID
are striking. Join
@MEActNet
's campaign to
#StopRestPace
Changes in temperature, barometric pressure, & humidity can all affect your body & symptoms. For those with chronic conditions, such as
#dysautonomia
, and before the arrival of COVID, this fall temperature change has become known as the “October Slide.”
#Microclots
are tiny blood clots that could explain
#LongCOVID
&
#MECFS
symptoms!
They block delicate blood vessels and deprive oxygen of getting to its destination, causing:
❌brain fog
❌organ damage
❌debilitating fatigue
❌
#PEM
#pwLC
#pwME
Viral infection can have long-term consequences for both the central nervous system(CNS) & the peripheral nervous system (PNS). SARS-CoV-2-associated PNS complications affect many
#pwLC
, causing different neuropathies and debilitating symptoms.
#LongCOVID
COVID-19 hospitalizations rise for the third consecutive week, with over 19,400 new admissions reported last week by the
@CDCgov
. 😷📈 Are you ready for the winter surge?
#COVIDIsNotOver
#MaskUp
A
#microclot
forms when an unusual amyloid-like version of the protein clumps together & stops oxygen from getting to where it needs to go, causing everything from shortness of breath, organ damage, brain fog, & debilitating fatigue in patients with
#COVID
,
#LongCOVID
, &
#MECFS
.
The COVID-19 pandemic has left a significant impact on global health, with a new concern emerging:
#LongCOVID
. But what treatments and drugs are available for these
#longhaulers
?
#pwLC
An infection often triggers
#POTS
and research has found that many
#pwLC
and
#pwME
also experience dizziness, increased heart rate when standing, and chronic fatigue. Discover more about the connections between these
#complexillnesses
.
#COVIDIsNotOver
"Treatment is very much individually tailored! It's a journey that you take with your patients. You're going through this together. You're both learning on this road & it can be tough."
@jencurtinmd
shares with
@NPR
how RTHM approaches treatment for
#pwLC
.
Do you have
#brainfog
? Signs of 😶🌫️:
💡Losing your train of thought
💡Difficulty finding the right words
💡Memory loss
💡Unable to stay on or finish a task
Cognitive dysfunction affects your ability to think as you once did.
#PEM
#SevereME
#LongCovid
There are promising treatments being studied to reduce the effect of autoantibodies. In clinical trials like BC007, an aptamer works by blocking and neutralizing autoantibodies that impact G-protein coupled receptors(GPCR).
The best way to prevent
#LongCOVID
is not to get
#COVID19
in the first place.
We’ve updated our guide to protect you. The more of these precautions you can layer on, the safer you will be without sacrificing your social life this holiday season.
While we understand that our current pricing model is expensive & out of reach for many
#pwLC
, we want you to understand that we see you. Our goal is to change how chronic illness care is approached so that those in need can get the care they deserve at a price they can afford.
🚨🦠A variant called JN.1 has now become the most common strain of
#COVID19
spreading across the US. The threat of developing
#LongCOVID
remains very real and it's essential to implement a recovery plan ASAP. Follow our protocol to reduce your risk.
🩻 Growing research shows that many
#pwLC
and
#pwME
have or are diagnosed with one or more connective tissue or structural disorders.
➖EDS
➖Fibromyalgia
➖Chiari Malformation
➖Tethered Cord Syndrome
Do you suspect you have one of these conditions?
🌐Health officials warn that the rapid growth of JN.1 during the holiday season could fuel winter waves across the US & beyond. The threat of
#LongCOVID
remains a significant reality.
How are you protecting yourself & your loved ones?
#COVIDIsNotOVER
🔗:
As mask mandates and pandemic practices around the country expire, it is important to know how to protect yourself in a world that doesn't understand
#LongCOVID
.
@jencurtinmd
answers patient questions regarding products that can help reduce your risk.
This finding is exciting because it may lead to a new potential treatment strategy for ME/CFS: lowering WASF3 protein to improve mitochondrial energy production after exercise to improve fatigue and PEM/PESE.
Research on one patient revealed new treatment strategies that may help
#MECFS
patients broadly! Hwang and colleagues discovered that Amanda Twinam's calf muscle took longer to regenerate energy after exercise due to an overproduction of the WASF3 protein.
🚨
#MECFS
affects over 20 million people worldwide.
Did you know?
🌐The exact cause is unknown
🌐Over 80% of cases stem from previous viral infections
🌐70% of
#pwME
cannot work
🌐25% of patients are homebound
#MillionsMissing
#LongCOVID
patients will alter healthcare as we know it!
Since it affects multiple systems, it means that many different medical specialists are necessary for multidisciplinary care.
RTHM provides whole-patient care, and we ensure our patients receive the care they need!
Mast cells are found throughout the body and play a complex and critical role in immune response and keeping people healthy. MCAS can affect multiple systems throughout the body, causing a list of possible symptoms.
Researchers are taking the first steps towards understanding treatments & biomarkers for
#LongCOVID
&
#MECFS
!
@jencurtinmd
explains how researchers identify & test for
#microclots
in the body, a significant breakthrough in treating these conditions.
#pwLC
Research on one patient revealed new treatment strategies that may help
#MECFS
patients broadly! Hwang and colleagues discovered that Amanda Twinam's calf muscle took longer to regenerate energy after exercise due to an overproduction of the WASF3 protein.
A new study links COVID-19 to high blood pressure onset in adults with heart conditions, older age, Black race, or male gender. The research found that out of 45,398 patients - 21% developed hypertension vs. 16% of flu patients.
#COVIDIsNotOver
#MedTwitter
Lingering headaches are not uncommon after viral infections, so it’s no surprise that people living with
#LongCOVID
and
#MECFS
suffer from headaches. Research shows that
#microclots
can prevent oxygen transportation causing these headaches.
Read more⬇️
@StanfordMed
Inflammation is a key player in Long COVID, with many patients experiencing a persistent inflammatory response. Drugs like colchicine, an anti-inflammatory medication traditionally used for gout, are being explored for their potential to reduce inflammation & alleviate symptoms.
🫁We know that acute COVID can lead to lung damage.
This damage can include severe inflammation of the lung tissue & scarring, or fibrosis. When this damage occurs, it is easily seen in routine testing, but what happens if routine tests come back normal?
Several studies have looked at the connection between
#COVID19
&
#diabetes
since the start of the pandemic. It was considered a risk factor for severe acute infection, but now researchers are finding that the virus is contributing to a rise in new cases.
The cause of
#POTS
is unknown, with many proposed mechanisms. However; the vasculature does not appear to respond to stimuli as well & since
#LongCOVID
is a vascular disease, it's damaging the endothelium and is less likely to be responsive to signals from the nervous system.
@LongCovidAdvoc
@RTHM_Health
POTS is attributed to dysautonomia ie disfunction of autonomic nervous system
Do we know whether it can be caused by / further aggravated by inability to constrict blood vessels adequately ? We know covid is a vascular disease.
Do you have unexplained allergic reactions?
#MastCellActivation
is a condition in which the patient experiences symptoms of anaphylaxis – allergic symptoms such as hives, redness, itching, and swelling.
#MCAS
#MCASAwareness
WASF3 protein disrupts energy production in mitochondria. This finding was also observed in 9 out of 14 ME/CFS patients in a recent study published in PNAS.
#MedTwitter
Research on one patient revealed new treatment strategies that may help
#MECFS
patients broadly! Hwang and colleagues discovered that Amanda Twinam's calf muscle took longer to regenerate energy after exercise due to an overproduction of the WASF3 protein.
All of the autoantibodies can be detected in healthy patients, but levels are usually lower than in sick people. The reference ranges for each result help you understand which of your antibody levels may be higher than the "normal" range that healthy people mostly fall into.
@RTHM_Health
I have got the test and will soon have my blood drawn. I have a question, which autoantibodies are the ones usually detected in sick patients? I have heard some autoantibodies can be detected in normal people so I would like to know which ones are more present in sick people
RTHM offers microscopy-based
#microclot
testing (research-based) for our
#pwLC
and
#pwME
. Treatment for these microclots focuses on the breakdown of the clots as well as addressing the hyperactivated platelets.
#TeamClots
#rthm_health
Our Post-COVID journey led us to realize that people with
#chronicillnesses
need educational resources at their fingertips.
The RTHM YouTube Channel hosts informative videos for patients, caregivers, physicians, and loved ones.
#MedTwitter
Subscribe👇
🦠COVID-19 Positive? Here's what a
#LongCOVID
doc would do! 🩺
Dr. Jennifer Curtin and Dr. Stuart Malcolm discuss their personal
#COVID19
prevention and protocol if they were to test positive. 👇
#CovidIsNotOver
How many people don’t know?
😷 Long COVID is the largest mass-disabling event in modern world history.
🦠 The acute viral infection was just the beginning for most, but for some,
#LongCOVID
has become their new reality.
⚕️
#LongHaulers
will alter healthcare as we know it!
Viral persistence in
#LongCOVID
refers to the possibility that the virus may continue to remain present in the body after an acute infection. While more research is needed to establish a direct link, some scientists consider this to be a leading driver.
RTHM knows how difficult it can be to find a medical team that listens to patient concerns and understands that how you feel is “not all in your head.”
What is your worst experience with a provider in your search for answers?
#MedicalGaslighting
#MedTwitter
#CovidIsNotOver
Can the aspirin in your medicine cabinet prevent
#microclots
?
The RTHM physicians share why they recommend using aspirin or baby aspirin in the prevention of microclots in patients infected with the Sars-CoV-2 virus.
Watch and learn why!
#TeamClots
Amazing news for long haulers! Germany funds another BC007 treatment trial from
@BerlinCures
This is a second 800,000€ trial into ME/CFS following the
#LongCovid
study. This is what we need - treatment trials! 🙌🙏🚀
#pwME
#treatlongcovid
#fblc
Growing research is showing that many
#pwLC
&
#pwME
have or receive a diagnosis of 1 or more connective tissue or structural disorders that are contributing to their symptoms. In many cases, these underlying conditions go undiagnosed for years.
“What we’ve found now is that, even though their CT scans are normal, the MRI scans have detected abnormalities in patients with
#LongCOVID
. These patients have never been in hospital and didn't have an acute severe illness when they had COVID-19."