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Marky Mark Profile
Marky Mark

@MrkStdngr

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#ME #CFS #CCI #POTS #MCAS

YYC, Moh-Kíns-Tsis, Treaty 7
Joined June 2018
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@MrkStdngr
Marky Mark
3 months
I don’t expect much here, as you’ve all been so generous, but my Mother started a new GoFundMe because my situation has become dire. We’re trying to get this in front of local media. But if you want to help me out one last time thanks for everything:
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@MrkStdngr
Marky Mark
1 year
I was trying to politely explain to a Radiologist today that I thought he was overlooking some structural damage in my throat on my MRI Scan and he responded with: “I went to Harvard”. So I followed up with “So did Ted Cruz”. He wasn’t too pleased with that.
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@MrkStdngr
Marky Mark
2 years
If you’re a Doctor please stop pointing out fact that a Disease existed before COVID. Yes we understand that, but Strokes are up 250%, some Cancers are up 400+%, Deaths are up 40%. It may have existed before, but COVID is increasing the rate at which it’s happening across board.
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@MrkStdngr
Marky Mark
2 years
I don’t know who needs to hear this, but COVID is nothing like the Flu. COVID is a Level 3 Pathogen that’s Killing more people in weeks than the Flu does in years. Covid Destroys your T-Cells and Binds to ACE2 (like HIV). COVID has increased Death Rates by 18+% in Ages 25 to 50.
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@MrkStdngr
Marky Mark
2 years
I’m becoming more Severe. I’m now bedridden 24-7 and it hardly even feels like I wake up these days, it feels like I’m sleep walking through life now. I’m taking a break from Twitter for my health, but please keep fighting for COVID Long Haulers. This is terrifying, life is over.
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@MrkStdngr
Marky Mark
1 year
I’ll never understand why Cardiologists aren’t sounding the alarm that Heart Attacks are up 72% and Strokes 52% since the Pandemic started. One of my Parents likely had COVID in 2020 and now they’re having Heart Issues. Cardiologist is blaming it on stress, not a Vascular Disease
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@MrkStdngr
Marky Mark
1 year
I feel like I’m in the Twilight Zone, people are dropping dead everywhere and no one is taking about the fact it’s likely COVID. How bad are things going to have to get? People moved on from a Pandemic prematurely, emotionally they want to be over it, but that’s not how it works.
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@MrkStdngr
Marky Mark
2 years
The only reason I am on Twitter is to warn people that you’re being LIED to about COVID and especially the absolute HORRORS of Long COVID. I’m not looking for sympathy of any kind, please know that. I know my fate, I shouldn’t be on here all day, but it’s my only purpose left.
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@MrkStdngr
Marky Mark
2 years
It’s astonishing how normal my blood tests are with Long COVID, whoever created this stealth, super virus did a bang up job. It’s literally destroyed my will to live in six months, caused me to lose 70 pounds and I can’t walk 100m anymore, but I’m healthy according to every test.
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@MrkStdngr
Marky Mark
1 year
Two friends had COVID for the third time this fall. Just talked to both of them, neither of them can get out of bed and they just don’t understand it. After 6-7+ Reinfections everyone is going to have some form of Long COVID.
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@MrkStdngr
Marky Mark
1 year
Close Friend had COVID recently. They were surprised to hear I’m having a hard time with it, as there’s and everyone else they know were “Mild”. He then proceeds to confide that he’s been having unexplainable rage episodes that come out of nowhere and was just fired from his job.
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@MrkStdngr
Marky Mark
9 months
Long COVID, ME/CFS is all in your Head. Until you try to Donate Blood when you’re still Moderate and they throw you out because “you could Kill someone, your Blood Destroys Recipients Endothelium almost immediately”. They know it’s not Psychological, the system is just rigged.
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@MrkStdngr
Marky Mark
1 year
All these Flight Attendants just dropping dead left and right should be the Canaries in the Coal Mine. The demographic that’s been the most exposed to COVID are all just dropping dead, but don’t start to sound the alarms. When we all have COVID 7-8 Times it will be different.
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@MrkStdngr
Marky Mark
2 years
I’m starting to believe COVID is going to have to Kill at least 10% of the World for people to care. Every single person is going to have to lose someone in their inner circle. I hope I’m wrong, but COVID is impossible to ignore now, people are dropping dead everywhere, but yet..
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@MrkStdngr
Marky Mark
2 years
I love how there were literally Influenza Strains that disappeared because everyone wore a mask during the start of the Pandemic, yet now we’re back to “people die all the time of Influenza, don’t worry about it” to justify people also dying in much higher numbers of COVID.
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@MrkStdngr
Marky Mark
9 months
The Bubonic Plague Killed 75-200 Million People in 7 Years. COVID has Killed 40-50+ Million People in 3.5. I understand the Planet is more Populated, but COVID is up there as one of the most destructive events in History and people won’t Mask? Good luck reversing Climate Change.
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Marky Mark
8 months
My family used to believe Alzheimer’s ran in the family. Then we realized my Great Aunts and Uncles were all exposed to Mild Polio as Kids. Nobody has gotten Alzeimers since.
@maosbot
Michael A Osborne
8 months
How much of ageing is actually just viruses?
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Marky Mark
2 years
I always hear Mediocre Doctors bemoaning the fact people research their illness, “Dr. Googling”, but do you know how many stories I’ve read of people saving their lives because they researched when Drs weren’t concerned enough? Drs are threatened people have access to information
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@MrkStdngr
Marky Mark
2 years
Dear Healthy People, The minute you become Disabled your worth to most people in our society goes to ZERO immediately. If you continue to risk exposure to COVID, you could end up Disabled with Long COVID. Your worth will be no longer, Just Ask Me.
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@MrkStdngr
Marky Mark
2 years
I’m becoming a Very Severe ME/CFS Case. I can hardly eat food now. So just wanted to say THANK YOU to everyone from the bottom of my heart for all the support. This is likely it for me on Twitter for a long while. I must stay off, even if it’s my last outlet on earth to connect.
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@MrkStdngr
Marky Mark
8 months
Why can’t Americans remember and mourn COVID Deaths (2+ Million People so far) like we do September 11th Deaths (2,996 People)?
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@MrkStdngr
Marky Mark
2 years
I’m fairly certain I’ve been reinfected with COVID while staying in the Hospital, as I was doing testing and treatments for Long COVID. I don’t know if we’re ever getting out of this as a society anymore and personally I have ZERO hope for myself now of living a normal life.
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@MrkStdngr
Marky Mark
5 months
So we learned today that the COVID Mortality Rate after 3 Years is 6-10% and we know it takes 10+ Years for Viral Mortality Rates to be fully realized. SARS-1 was what 20%? Get ready for possibly 1 in Every 5-12 People you know to Die in the coming Decade. Foolish, Foolish Humans
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@MrkStdngr
Marky Mark
8 months
Are we honestly going to pretend like COVID is some mysterious illness until half the fucking world is disabled?
@PeterJBeaver
Dr Peter Beaver 🇵🇸
8 months
Singer song-writer Lorde suffering mystery inflammatory illness. "My gut isn't working properly, my skin is worse than ever, I've gotten sick half a dozen times."
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@MrkStdngr
Marky Mark
1 year
My Father couldn’t get ahold of his Doctor the last week or so. Um Apparently he’s dead. Sounds like COVID. Let’s just remove Masks from Hospitals and Clinics so that Doctors aren’t Safe either and they all get Long COVID or Die, so we have nobody left to help us when we are sick
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@MrkStdngr
Marky Mark
1 year
So just checking in, COVID-19 causes Heart Attacks, Strokes, Prions, Cancer, Diabetes, Alzheimer’s, Infertility, Miscarriages, Auto Immune Diseases such as ME/CFS, Myocarditis/POTS, Brain Damage in basically everyone and we’re just going to keep letting everyone get infected?
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@MrkStdngr
Marky Mark
11 months
This is not normal. This should be sounding massive alarm bells. You can now get COVID three times a year. What other Virus causes that much Reinfection? No one will be left on Earth in a Decade if we’ve all had COVID 15-20+ Times. Do we want to slow this down to buy more time?
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Marky Mark
2 years
So I drove 12 Hours to see a Long COVID “Specialist” in Vancouver for him to tell me five minutes in that ME/CFS is only genetic and that he’s never even heard of POTS. He supposedly teaches ME/CFS and Long COVID at University. I don’t stand a chance of survival at this point.
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@MrkStdngr
Marky Mark
11 months
A few rich people dying in a Submarine captivates the entire world, but 30+ Million people dying of COVID in only 3 Years with Millions more becoming Disabled with Long COVID every year is easily swept under the rug and totally disregarded by most of society.
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@MrkStdngr
Marky Mark
2 years
Here me out, I think some Doctors have Brain Damage from numerous COVID Infections and it’s impacting their decision making process... I’m not joking. I see patients getting dismissed more than normal. I was sent home other day because “vitals were fine” (w 180+ Resting HR).
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@MrkStdngr
Marky Mark
10 months
The Highest Performance Athletes with the best testing in the world, are Biking with Masks, because they see what COVID is doing to people long term at the Anabolic Level better than anyone else. This should really make people think.
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Marky Mark
2 years
I have no hope of ever living a normal life ever again, when two years after the pandemic started Harvard Professors are still creating studies that gaslight Long COVID and say it’s all psychological. I truly believe now no cure will ever come for us, ME/CFS folks were right.
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Marky Mark
1 year
People didn’t get The Spanish Flu, H1N1, SARS1 more than one, most people only get Influenza 2-4 times in their lifetime and new evidence suggests the more you’re exposed to Viruses the more your cellular health suffers later in life. We’re living in fucking unprecedented times.
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Marky Mark
9 months
When you walk into a Rheumatologist Appointment and they aren’t wearing a Mask. Just walk out, don’t waste your energy, also how the heck do Rheumatologists know so little about Long COVID? It’s supposed to be your speciality.
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@MrkStdngr
Marky Mark
10 months
My Throat Collapsed more I’m not going to make it if I don’t have immediate Surgery. Thanks for being such good friends. I wish we all could have got better and visited each other around the World. You all are so special, keep fighting if I don’t make it. Fight for people like me
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@MrkStdngr
Marky Mark
2 years
Long COVID is going to severely disable 300+ Million People and affect Billions of others for decades. This ain’t something that should only have grassroots funding... This could alter our entire planet forever if we don’t manage it soon and after two years nothing has changed?!?
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@MrkStdngr
Marky Mark
1 year
I don’t even know if it’s worth Tweeting anymore. My engagement has fallen off a cliff, likely due to a Twitter algorithm change. I feel like I’m in an echo chamber screaming into my own face, as my condition gets worse and worse. I hope I was able to even have a little impact.
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@MrkStdngr
Marky Mark
8 months
Every time I post Factual Information about COVID on Reddit I Immediately get banned from that Forum now. The World has lost its Collective Mind. Twitter (or X) is the last place left you can talk about COVID (SARS-2). Humanity is so fucked, people have no idea what’s coming.
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@MrkStdngr
Marky Mark
1 year
Cardiologist with a long thread on how he witnessed multiple Cardiac Arrests in the same Marathon, yet he bizarrely doesn’t mention COVID once… Risk of Heart Failure increases by 72%, Stroke increases by 52% after COVID. Why are Cardiologists ignoring this increase after COVID?
@SteveLome
Steven Lome
1 year
I ran a half marathon this past weekend. I feel quite honored to work as a cardiologist and use my training for the benefit of others, but I never expected those skills to be needed in this manner outside of work.
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Marky Mark
1 year
Biggest misconception behind Influenza is most people view the Common Cold as Influenza, but in reality most only get The Flu once or twice in their life. If COVID continues to mutate at the rate it is, people getting 7-8 Reinfections every 5-6 Years is unprecedented and scary.
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Marky Mark
1 year
My Mother likely had COVID a month ago, she was sick with a severe sinus infection and couldn’t get out of bed for a month straight. She is now showing signs of Left Ventricle Heart Damage. Cardiologists say it’s due to “stress” from watching me become so sick, it’s never COVID.
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@MrkStdngr
Marky Mark
6 months
Looks like I’m on Welfare. $800, month for the rest of my life. Before I got sick I was just about to start a Job that paid me $8,000 a Month. I had $35,000 saved and was about to buy a two bedroom Condo. Now I owe $12,000 on my Credit Cards. Long COVID is fun we chose this life?
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Marky Mark
2 years
I can see the right side of my throat has completely collapsed, I can feel my spine sticking through it. But the ER sent me home again. When I die tell the world I tried, I fought for decent care and to prevent all of this. I fought to keep fighting with all of you.
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@MrkStdngr
Marky Mark
2 years
Post-Exertional Malaise has literally destroyed my will to live in six months, I just can’t take the PEM constantly. I can’t take no one around me understanding that if I do too much, it will harm me for life. It’s completely isolated me from the world and is beyond terrifying.
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Marky Mark
1 year
COVID Lockdowns lasted 3-4 Months in most places. I saw my Niece and Nephew more than ever once things opened up for small gatherings. People have been convinced they suffered this hardship that didn’t really exist. COVID causes Brian Damage, that’s why Kids are now struggling.
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@MrkStdngr
Marky Mark
2 years
I haven’t heard of anyone whose had COVID 3-4 Times who doesn’t at least have some type of complication. What are we doing? It feels like we’re living in a simulation, I don’t feel like this world makes sense anymore.
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@MrkStdngr
Marky Mark
2 years
I read the other day that the Suicide Rate for ME/CFS sufferers is 12% and frankly that shocked me. After living with this nightmare of a condition for seven months, I can’t believe it’s not much higher. Which shows how completely sane, strong willed and tough ME/CFS suffers are.
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Marky Mark
1 year
How did we go from locking down for a couple months to try and prevent the spread of a Super Virus. To essentially thinking it’s a good idea to make your Population as sick as possible and to never even isolate when you’re sick? This is the Twilight Zone we’re all in.
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Marky Mark
1 year
In 53 Years AIDS has Killed 40+ Million People. In 3 Years COVID has Killed 21+ Million. Everyone in the world is terrified of getting AIDS, but not so much COVID. COVID has killed people 8x times faster than AIDS. Keep wearing Condoms stop wearing Masks…
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Marky Mark
2 years
The Left is ignoring COVID because they believe they can’t win elections by doing right thing. The Right is pretending that it’s a conspiracy. COVID is still ripping and we’re in the midst of a pandemic no one acknowledges anymore. How bad is this going to get before it changes?
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Marky Mark
1 year
COVIDs causing Heart Attacks, Strokes, Cancer, Diabetes, Long COVID, ME/CFS, Permanent Brain Damage, Rapid onset Alzheimer’s and Parkinson’s, Miscarriages, Impotence, Shrunken Lungs and Brains in Babies, T-Cell Depletion (like HIV) and we’re living with it? We’re in Twilight Zone
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@MrkStdngr
Marky Mark
2 years
They’re sending me to a Mental Ward for up to a Month, which will literally make me Very Severe ME/CFS. My Parents are supporting it as they think it’s in my best interest, because they have no clue about Severe ME/CFS. I’ll try to fight it, but it seems like a losing battle.
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Marky Mark
1 year
Strange sitting in ER listening to my Bedmates talk to Doctors. Person to left has been given FND Diagnosis, despite developing Seizures out of nowhere. Person to right has no energy, can hardly get out of bed, Dr was worried about Depression. Long COVID is everywhere yet nowhere
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@MrkStdngr
Marky Mark
2 years
I don’t understand how Anti-Vaxxers think the Spike Protein in the Vaccinations can cause damage, but they also don’t in turn blame the actual Spike Protein in the Virus for any damage?
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@MrkStdngr
Marky Mark
9 months
I’ve really think COVID has Damaged Peoples Fear Centre. I’ve brought legit evidence to Doctors of how High Risk of Arterial Dissection I am and they just stare at me blankly. They say “come back when you’re dying”. My response is “I have a 0-34% chance of living at that point”…
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@MrkStdngr
Marky Mark
1 year
My Mother has applied for MAID for me, she knows when she no longer can take care of me I don’t have any other options. Severe ME/CFS rarely is acknowledged by the system. I can’t even get Home Care or Disability Pay (why Health Insurers have Psychologized ME/CFS for decades).
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@MrkStdngr
Marky Mark
1 year
If you told me a Virus was responsible for 25-30+ Million Excess Deaths in only three years and not a single person would attribute it to the Virus (including a lot of Doctors) and it would just be this big elephant in the room that was taboo to talk about… Again Twilight Zone.
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Marky Mark
8 months
I went on Facebook for the first time in awhile yesterday and found three recent obituaries for People under 40 who I grew up with. I only have 200 Friends on Facebook. The COVID silent death era is starting. That’s as many that have Died since I graduated High School in 2005.
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@MrkStdngr
Marky Mark
2 years
How It Started (Long COVID Nightmare): I’ll be better in 6 Months How It’s Going: I would kill to even get 10% better someday, so I could just be Housebound and not Bedbound for the rest of my life. #LongCovid
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@MrkStdngr
Marky Mark
2 years
My CranioCervical Instability is getting worse by the day with Long COVID, can hardly swallow small pieces of food now, as the back of my neck is collapsing into my throat, no Doctor understands this near me. I’m now severely bedbound and getting worse, Universe doesn’t want me.
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@MrkStdngr
Marky Mark
2 years
There is no way I make it through this (Cytokine Storms won’t quit and I cant prove to Dr), but if I ever got over my Long COVID/ME/CFS I would spend the rest of my life traveling the world visiting people who supported and helped me on Twitter and in other support groups.
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@MrkStdngr
Marky Mark
8 months
Pilots are the canaries in the coal mine. They’re the highest exposure to COVID, most have already had it 5-6 Times. Job Shortages will be across all industries in another few years, why are Businesses letting their workforces Die and become Disabled?
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@MrkStdngr
Marky Mark
2 years
Essentially everyone I talk to with Long COVID had Eczema as a child. I wonder if there is a link that is worth pursuing? #LongCovid
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Marky Mark
1 year
Coroners are finding Long COVID Showing up on Death Records more and more frequently and Doctors are making fun of Patients dying of these Diseases. Bien and Prasad are Eugenicists.
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@MrkStdngr
Marky Mark
2 years
Went to ER because I’m Blacking Out 2-3 Times a day… Doctor told me to see a Psychologist... Putting that I was ME/CFS on my Health File was the Dumbest thing I could have ever done.
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@MrkStdngr
Marky Mark
2 years
I’m starting to become Non-Verbal, my Brain shuts off after a couple sentences of conversation. What an absolute nightmare of an illness. I can’t believe I’m living in this horror now.
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@MrkStdngr
Marky Mark
11 months
Today is my 36th Birthday, I Highly Doubt I’ll see my 37th, because of complication due to Severe Long COVID. Yet all of my Friends and Family message me as if it’s 2019 and COVID never happened. COVID could shortened the lives of Billions, but they pretend it’s over… for now.
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@MrkStdngr
Marky Mark
1 year
Masks don’t work. Well Japan had less lockdowns than the USA, but they had better contact tracing, isolation support and of course everyone wore a Mask. Comparably to the USA Japan should have had 460,000+ Excess Deaths (they had 71,507). Masks in Japan saved 385,000+ Lives.
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Marky Mark
1 year
Considering 40% of SARS-2/3 is Asymptomatic, High Exposure People who’ve already had 2-3 Confirmed Infections, likely have already had COVID 4-6 Times. Again the Mice all Died after 10 Infections. What the fuck are we doing? No one is living to 70 at this rate.
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Marky Mark
2 years
Imagine if they do cure ME/CFS, Long COVID someday, even to a moderate extent. Imagine living like we’re and going back to living relatively normally. How sweet life would be…
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@MrkStdngr
Marky Mark
1 year
Show this Graph to anyone saying Safety Measures in Schools didn’t work. This Data is European Excess Mortality Ages 0-14. You can see exactly when the mandates stopped in 2021. We’re killing kids because we refuse to wear a piece of paper on our face in crowded areas.
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Marky Mark
5 months
Remember that time a plane full of a 100 of World Leading Experts on HIV/AIDS was “randomly” shot down over the Ukraine with state of art Javelin Missile? I think about that a lot. They said Cure for AIDS Died on that Plane. HIV/AIDS Medication is a 22+ Billion per year Industry.
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Marky Mark
2 years
I see frustrated ME/CFS sufferers upset Long COVID is getting all the attention, but take solace in fact there are going to be 600+ Million people living w Long COVID, can’t sweep that under the rug anymore. We won’t forget ME/CFS kindness when we first got LC…We’ll come for you
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Marky Mark
11 months
If I was in charge of a Country here is the COVID Safety Policy I would enact. N95 Masks on Planes, in Hospitals, at Concerts/Sporting Events over 1,000 People, Improved HVAC in Bars and Schools. That’s it, that alone might save the world. That’s not a major inconvenience.
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Marky Mark
2 years
Fell down a flight of Concrete Stairs a week ago. Cracked my Ribs, Spine, Shoulder Blade and Tore Achilles. They’re now sending me to a Psyche Ward, despite not being able to stand and <95 Blood Oxygen. Still didn’t get to see an ENT to look at my throat. Fuck this fucking world.
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Marky Mark
2 years
Dumbest thing I did when I first got Long COVID was run a Million Blood Tests, all came back normal and wasted my energy. But now that I’ve gotten sicker I know they all wouldn’t be normal, but Doctors are still relying on old information and thinking I’m still fine, just anxiety
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@MrkStdngr
Marky Mark
9 months
Thanks everyone for all your support. Much Love to everyone in the community. Please continue fighting for ME/CFS, Long COVID, EDS, CCI, Lyme, etc. Please continue warning the world that COVID is much, much worse than we’re being led to believe. I fear I don’t have long now.
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@MrkStdngr
Marky Mark
1 year
I couldn’t understand why a group of Doctors fudged Masking Studies to pretend they weren’t effective, I just couldn’t understand their Prerogative behind that, but then I realized they’re entitled and don’t want to wear Masks 24/7. It was just self serving.
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@MrkStdngr
Marky Mark
2 years
@efenigson @GBNEWS @YaffaRaz @thecoastguy My second Pfizer Vaccination made me Severe ME/CFS, I’m now completely Bedbound. My life is over at 35 years old. I have no reason for living other than I don’t want my Parents to have to bury me. I hiked three mountains the week before my injury.
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@MrkStdngr
Marky Mark
2 years
I don’t want this life anymore. Six months of Long COVID and all I ponder all day is what is beyond this life? If I knew that answer I wouldn’t be here anymore. I can’t stop morning my old self, I’m not cut out for this. Even the worst option of being worm food might be better…
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Marky Mark
1 year
I haven’t met a single ER Doctor who hasn’t rolled their eyes at me when I mention Long COVID and ME/CFS. Clearly they’re not taught about Post Viral Complications. Which also explains why they still aren’t sounding the alarm when it comes to the Stroke and Heart Attack Surge.
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@MrkStdngr
Marky Mark
2 years
It was weird sitting in the ER last weekend, I was with three others in shared room. One recently had a stroke and was having chest pain. Second was having fatigue and chronic migraines. Third had recently developed a severe heart issue. COVID wasn’t mentioned once, all under 50
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@MrkStdngr
Marky Mark
2 years
99% of People in Society aren’t Hypochondriacs. Most unknown illnesses historically have been labeled as Hypochondria, until they’re properly researched and various diagnosis methods are created. Hypochondria is much more rare than Doctors want to admit. People aren’t crazy.
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@MrkStdngr
Marky Mark
7 months
I found a Doctor that fully listened to me and took my option on something, first one in three years. It was kind of a surreal experience. Throat Surgery Tomorrow. Thanks for all your support. Couldn’t have done this without you.
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Marky Mark
1 year
Three years ago I had $40,000 Saved for a Downpayment on a Townhouse, my Credit Score was 790, I was about to start a Job worth $96,000 a year. Now I owe $11,300, my Credit Score is 320 and I’m on the verge of Bankruptcy. Thanks Long COVID.
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@MrkStdngr
Marky Mark
2 years
There are 25 Million people with ME/CFS and at least 40-60M+ people (going to be 300M+) with Long COVID and people are still pulling the “it’s all in your head card”?!?! I just don’t fucking understand our world anymore. How bad is this going to get before real change?
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@MrkStdngr
Marky Mark
2 years
If I ever beat this horrible disease, which seems so unlikely at this point, I’m going to camp for years on end, all over North America. I always loved camping, but didn’t go nearly enough. Even if I only get 30-40% better someday I’m going once more, I don’t care if it kills me.
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@MrkStdngr
Marky Mark
1 year
How do Rheumatologists know so little about COVID, Long COVID and ME/CFS? It’s literally their specialty and they know less than most Surgeons or GPs and that’s usually not saying much. My GP has sent me to two and I told my GP after both meetings that she knew more about ME/CFS.
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@MrkStdngr
Marky Mark
7 months
Surgery over, back in the AirBnB. It’s bittersweet, didn’t shutoff the Autoimmune Reaction, but clearly did some good. Don’t know where to turn next. Maybe when the swelling goes down it will relax the nerves more. I feel like I’ve been running a Marathon everyday for two years.
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Marky Mark
1 year
I’m not going to make it. I read an article months ago that Cytokine Storms can just be Autonomic Nervous System based. It seems to be drawing the Collagen out of my body (MCAS?) at a rapid rate. I feel my throat and Spine collapsing every hour. Thank you for your friendship.
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Marky Mark
1 year
I never in a million years thought we would remove Masks from Hospitals or Medical Offices. I thought they’d be here to stay. Imagine all of the lives that would have been saved historically even before COVID. Influenza A/B have ripped through ER/Hospice Wards for Decades.
@SarahLerner
Sarah Lerner
1 year
Videos of HCWs who are gleefully cheering on the removal of masking in health care settings are creepy & bleak as hell. Cuz not only will this harm patients, but it will harm them, too. No one wins. #KeepMasksInHealthcare #KeepMasksInCA
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Marky Mark
2 years
Neither of my parents fully grasp Long COVID, I’m just living in a nightmare. If they don’t understand it, watching me wither away in bed. How is the rest of the world? Virus’s are so fucking evil and they get ignored because they’re so sneaky, they attack and maim silently.
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Marky Mark
2 years
@____B_S____ It’s mostly safe, snakes will stop eating before big meals, so you know when they’re going to kill you. But snakes don’t feel love and are loyal to no one, I knew someone who owned a boa for years and then it stopped eating one day and the vet explained what that meant
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Marky Mark
1 year
Thanks for all the support everyone. I managed to get out of the Hospital. I’m still getting sicker and sicker and I fear greatly for my life and my worsening condition, but I wouldn’t be here without you all. I should be in a Hospital, but it doesn’t work like that with ME/CFS.
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Marky Mark
11 months
When people hear of Severe ME/CFS/Long COVID People being Bedridden, I think they often assume we watch Movies, play Video Games. The few days I have enough energy to listen to an Audiobook, it’s a major win. But on bad days using your Brain Daydreaming takes up too much energy.
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Marky Mark
2 years
“Other reasons for increased strokes in young people are poor diet and more sedentary lifestyles. The latter, she noted, has been exacerbated by the COVID-19 pandemic.” What World are we living in?!?! COVID is a Vascular Disease that destroys Organs!!
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Marky Mark
2 years
Post-Exertional Malaise is the cruelest concept I’ve ever come across, it truly defies logic. I think that’s why the Medical Community cannot comprehend ME/CFS and the HORRORS we face on daily basis. Parents disappointed I’m not pushing for treatments, I cannot afford the energy.
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@MrkStdngr
Marky Mark
2 years
I waited 8 Hours in ER last night because I feel like my Health Issues are seriously life threatening. ER Doctor wouldn’t run basic Blood Tests let alone CT Scan or MRI. I just want to say to them, what if your kid had an unrecognized and incurable illness, what would you do?
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Marky Mark
2 years
@ales_frost I have Long COVID, outside of my parents I’ve only told four or five people. None of my close friends know. Major stigma behind being disabled for life possibly. It also took me more than a year and half to show full Long COVID Symptoms.
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Marky Mark
1 year
I really miss working, everyone wants to pretend Disabled people with Long COVID/ME/CFS don’t want to work by choice (which is extra crazy when you consider less than 5% of those with Long ME/CFS actually get Disability Pay), but I loved my job and studied seven years for it.
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