IMHO this is one of the most important plots for
#LongCovid
/
#MECFS
research advocacy — & the main reason why we still don’t have treatments for
#MECFS
(& the
#MECFS
-Subtype of
#LongCovid
).
Research $ for
#MECFS
need to ⬆️ significantly — ideally to levels seen in
#HIV
research.
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Replies
This also needs to be looked at in the context of prevalence in the U.S. (as % of total population):
- ME/CFS: 1.3% (~ 4.3 million people)
- HIV: ~0.36% (~1.2 million people)
I've just made a plot showing the cumulative numbers of scientific papers published on 👇
1)
#MECFS
2)
#LongCovid
3) Multiple Sclerosis
The latest
@CDCgov
estimate is that ME/CFS has a prevalence in adults of 1.3% - compared to around 0.3% for MS.
ME clearly underfunded!
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I’m not suggesting that HIV/AIDS research $ are too high. It’s remarkable what has been achieved in that area. Instead, research $ for
#LongCovid
&
#MECFS
need to be ⬆️ significantly.
Prominent researchers, clinicians etc are asking for exactly that:
NEW: More than 80 prominent researchers, clinicians, health advocates, and organizations are calling on President Biden to urgently address the
#LongCovid
crisis with annual funding in the billions, via a public letter published this morning.
Read more:
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@ElkeAsen
Absolutely - I think ME/CFS research is vital to Long Covid and vice versa. The great advantage of Long Covid research is that we know the exact viral trigger, but Long Covid is a rather broad and ill-defined category. ME/CFS is a clearer target.
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