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๐Ÿ’–๐Ÿ’„ Aoife โ™ฟ๐Ÿ’œ

@Aoiferocksitout

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Woman about town #NYC Advocacy, Activism, Pop Culture Maven, Reader, Writer Nihongo Ivrit ๐ŸŒˆ She/her #Chronicillness #gastroparesis #DisabilitySolidarity

Babylon-on-the-Hudson
Joined September 2013
Don't wanna be here? Send us removal request.
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@Aoiferocksitout
๐Ÿ’–๐Ÿ’„ Aoife โ™ฟ๐Ÿ’œ
@Aoiferocksitout
5 years
About me: I'm #NYC strong. I am interested in #Disability advocacy & activism. I want NYC to be an #accessible city, from public transit, to accessible buildings. I want all patients to have better access to care, treatment options and access to resources. #Disabled
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@Aoiferocksitout
๐Ÿ’–๐Ÿ’„ Aoife โ™ฟ๐Ÿ’œ
@Aoiferocksitout
3 years
U.S. is suing Uber for discrimination against disabled people. If you, or someone they were traveling with, were charged wait time fees should contact the Justice Department at 833-591-0425 (toll-free), 202-305-6786, or send an email to Uber.Fee @usdoj .gov. #DisabilityRights
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๐Ÿ’–๐Ÿ’„ Aoife โ™ฟ๐Ÿ’œ
@Aoiferocksitout
8 months
What people in the disability communities are saying about people in Gaza is absolutely true. As a non-disabled person, it's hard enough to evacuate. Most of the time there is no plan to evacuate disabled people and we get left behind. Right now there isn't even water in Gaza...
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๐Ÿ’–๐Ÿ’„ Aoife โ™ฟ๐Ÿ’œ
@Aoiferocksitout
6 years
Have you tried rubbing castor oil clockwise on your stomach,during the waxing quarter moon? It helped my brother's husband's brother's hamster's mother who has a condition completely unrelated to yours. #HowToPissOffDisabledPeople
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๐Ÿ’–๐Ÿ’„ Aoife โ™ฟ๐Ÿ’œ
@Aoiferocksitout
2 years
PSA of the Day, II: Non-disabled "leftists", when a group of you start making fun of a list of someone's medical conditions, that is not solidarity. No one should have to tell you this. Yes, people can have more than one illness, that's often how chronic illnesses work.
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๐Ÿ’–๐Ÿ’„ Aoife โ™ฟ๐Ÿ’œ
@Aoiferocksitout
3 years
Hey @nyphospital why do I have harmful notes in my medical records saying I have "victimization mentality, splitting & possible dependent personality disorder? None of these items were written by a mental health professional. Please have someone contact me to remove the items
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@Aoiferocksitout
๐Ÿ’–๐Ÿ’„ Aoife โ™ฟ๐Ÿ’œ
@Aoiferocksitout
2 years
Virtual birthday party time ๐ŸŽ‰๐ŸŽˆ๐Ÿ’–!! This is almost 45! I'll take it.
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๐Ÿ’–๐Ÿ’„ Aoife โ™ฟ๐Ÿ’œ
@Aoiferocksitout
3 years
Please keep talking about Erin Gilmer and let her name continue to trend. Please keep talking about her life and her work. Please keep talking about the doctors, hospital and system that failed her in every way. Please keep telling the world about Erin.
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๐Ÿ’–๐Ÿ’„ Aoife โ™ฟ๐Ÿ’œ
@Aoiferocksitout
3 years
@justinmaykel A problem for who? Not for patients. Too many of us are constantly dealing with ableism, racism and other types of bigotry from medical staff when we are just trying to get medical care. Learning our results means we can start thinking about our care. Doctors don't comfort us.
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@Aoiferocksitout
๐Ÿ’–๐Ÿ’„ Aoife โ™ฟ๐Ÿ’œ
@Aoiferocksitout
4 years
I'm getting tired of non- #disabled people writing about living through stay at home orders, when disabled people who live in their homes have been dismissed, insulted and ignored. A Thread.
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๐Ÿ’–๐Ÿ’„ Aoife โ™ฟ๐Ÿ’œ
@Aoiferocksitout
2 years
Evergreen PSA of the Day: Apparently it needs to be said yet again: Non-disabled people, disabled and disability are not bad words. It's what most of us prefer to be called. Stop making up all manner of ridiculous euphemisms for these words.
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๐Ÿ’–๐Ÿ’„ Aoife โ™ฟ๐Ÿ’œ
@Aoiferocksitout
5 years
#TheCostOfBeingDisabled for me goes far beyond the financial issues. What did my #Disability cost me? My body and mind My degree Parenthood My autonomy My ability to make sure I won't be homeless when I am elderly,& will have proper care. What should be my right to marry
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๐Ÿ’–๐Ÿ’„ Aoife โ™ฟ๐Ÿ’œ
@Aoiferocksitout
3 years
1) I need you to know about @GilmerHealthLaw and her important work in healthcare. Please read everything she ever wrote, especially her handbook on Trauma Informed Care. Please know how incredible, loving, tenacious, and brilliant. She used her skills & talents to help everyone.
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@Aoiferocksitout
๐Ÿ’–๐Ÿ’„ Aoife โ™ฟ๐Ÿ’œ
@Aoiferocksitout
9 months
Think back to when you were in school. How many times were you denied permission to go to the bathroom? How many times were you denied permission to go to the nurse's office, if your school even had a school nurse? Why do we do let this happen to children at school??
@ninamonei
The Same Chick Who โœจ
@ninamonei
9 months
There was a viral tweet years ago where teachers were defending not letting children go to the bathroom bc โ€œtheyโ€™re lying.โ€ This cop ass overseer shit needs to die. Adults criminalize children + decide theyโ€™re lying about their needs + the consequences are dehumanizing to lethal.
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@Aoiferocksitout
๐Ÿ’–๐Ÿ’„ Aoife โ™ฟ๐Ÿ’œ
@Aoiferocksitout
6 years
#TheresePatriciaOkoumou used her 4th of July to engage in actual #Patriotism . Can you imagine if the 4th became known as a day of patriotic protest, instead of celebrating revisionist nationalism? I would celebrate that holiday!
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๐Ÿ’–๐Ÿ’„ Aoife โ™ฟ๐Ÿ’œ
@Aoiferocksitout
2 years
Again I ask why don't we have detachable body parts? My abdomen and digestive system organs need to be put to the side right now until it all stops hurting this much. Bodies...
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@Aoiferocksitout
๐Ÿ’–๐Ÿ’„ Aoife โ™ฟ๐Ÿ’œ
@Aoiferocksitout
4 years
I have several chronic illnesses and health conditions which make my immune system a mess. My life matters, all #disabled people and chronically ill people matter, even if we are under 50. Do not forget about us, please do whatever you are able to keep us safe. #HighRiskCovid19
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๐Ÿ’–๐Ÿ’„ Aoife โ™ฟ๐Ÿ’œ
@Aoiferocksitout
7 years
I am disabled,have chronic illnesses, chronic pain,and have no other way to pay for my medical care but Medicaid #iamapreexistingcondition
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๐Ÿ’–๐Ÿ’„ Aoife โ™ฟ๐Ÿ’œ
@Aoiferocksitout
3 years
@DSA_LosAngeles How long will it be before all chapters of #DSA take the time to learn about disabled people, be able to say the word disabled and recognize our contributions to a society with justice? Until then, I will not join.
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๐Ÿ’–๐Ÿ’„ Aoife โ™ฟ๐Ÿ’œ
@Aoiferocksitout
4 years
@amylopan Gallbladder pain, while a team of incompetent doctors ignored and gaslit me, resulting in three years of this thing being inside me, before one of them checked it out and said I needed surgery.
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๐Ÿ’–๐Ÿ’„ Aoife โ™ฟ๐Ÿ’œ
@Aoiferocksitout
5 years
#DisabledPeopleAreHot , yes we are!
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๐Ÿ’–๐Ÿ’„ Aoife โ™ฟ๐Ÿ’œ
@Aoiferocksitout
5 years
"What happened", is not how one starts a conversation with a stranger. #ThingsDisabledPeopleKnow
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@Aoiferocksitout
๐Ÿ’–๐Ÿ’„ Aoife โ™ฟ๐Ÿ’œ
@Aoiferocksitout
1 year
Dad passed away a little before midnight. He was given something so he did not suffer for the last few hours. Please say a prayer or send a good thought for my father, my stepmom and me. It seems wrong, weird, not right, nothing about this is alright except he's not suffering.
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๐Ÿ’–๐Ÿ’„ Aoife โ™ฟ๐Ÿ’œ
@Aoiferocksitout
3 years
Get Erin's name out of your mouth if you didn't know her and think she just needed MH care. Don't write about her passing if you can't get basic information correct like who she addressed in her goodbye. Don't be a ghoul now or ever. Erin Gilmer will not be disrespected.
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@Aoiferocksitout
๐Ÿ’–๐Ÿ’„ Aoife โ™ฟ๐Ÿ’œ
@Aoiferocksitout
4 years
Remember,as the #IowaCaucuses are today, that hundreds of thousands of #disabled Iowans, elderly Iowans, Working Iowans, Iowans with families are unable to #Caucus and are left out of the process. #Iowans please demand a change so more people can have a say in national elections
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@Aoiferocksitout
๐Ÿ’–๐Ÿ’„ Aoife โ™ฟ๐Ÿ’œ
@Aoiferocksitout
6 years
This is what the @HouseGOP did today instead of discussing the human rights crisis going on rn. Get ready to call your elected officials about even more things now.
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๐Ÿ’–๐Ÿ’„ Aoife โ™ฟ๐Ÿ’œ
@Aoiferocksitout
3 months
Hooray ๐ŸŽ‰ I am more more middle-aged today!! I'm glad to see another year and hope it's better than last year!!
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๐Ÿ’–๐Ÿ’„ Aoife โ™ฟ๐Ÿ’œ
@Aoiferocksitout
5 years
People can become #disabled at any age. It's not something that only happens after you turn 65. Please learn this. #AbledsAreWeird
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@Aoiferocksitout
๐Ÿ’–๐Ÿ’„ Aoife โ™ฟ๐Ÿ’œ
@Aoiferocksitout
3 years
2) I need you to know what @GilmerHealthLaw did for the Disability community. I also need you to know how badly she was failed by US healthcare, her doctors. She suffered for years because of the very things she fought to change. I need you to know she fought for you and me.
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๐Ÿ’–๐Ÿ’„ Aoife โ™ฟ๐Ÿ’œ
@Aoiferocksitout
3 years
3) I need you to know that @GilmerHealthLaw was a real human being. She was fun, loved her kitties, was salty when necessary, but far more kind and diplomatic. I also need you to know how much she should have been recognized in this community for her tireless work.
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๐Ÿ’–๐Ÿ’„ Aoife โ™ฟ๐Ÿ’œ
@Aoiferocksitout
5 years
I cannot deal with this extreme #ChronicPain and other symptoms, and there is nothing to be done about it. I cannot take this anymore. I feel robbed of my words, my autonomy. Trying to remain positive is a 24/7 job. If you feel like this too, my DMS are Open to you. โค๏ธโค๏ธ
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๐Ÿ’–๐Ÿ’„ Aoife โ™ฟ๐Ÿ’œ
@Aoiferocksitout
1 year
@mish_aderr I still don't understand why she's calling her sis.
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๐Ÿ’–๐Ÿ’„ Aoife โ™ฟ๐Ÿ’œ
@Aoiferocksitout
6 years
Hey, it's Aoife, your friendly neighborhood #disabled person, living w/ #chronicillness & #ChronicPain . Today we are going to discuss what Not to tell disabled ppl, & please, join in, and add your voice! A THREAD
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๐Ÿ’–๐Ÿ’„ Aoife โ™ฟ๐Ÿ’œ
@Aoiferocksitout
2 years
Checks why #POTS is trending, could it be people are talking about this chronic condition for awareness? No, some nonsense article was published saying that people with POTS are too scared to stand. I'm not making this up.
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๐Ÿ’–๐Ÿ’„ Aoife โ™ฟ๐Ÿ’œ
@Aoiferocksitout
4 years
I was not able to finish my degree because I can't attend classes in person. I was able to take some online classes, but not all. Pretty sure all students at this uni are having online courses right now. Why does it take a pandemic to have #accessibility ? #DisabledAndSaltyAF
@Imani_Barbarin
So, youโ€™ve probably seen mine and other disabled peopleโ€™s pissed off tweets about the response to the #CoronaVirus . Youโ€™re probably wondering why were #DisabledAndSaltyAF . Hereโ€™s a thread as to why. Join me, if you please... 1/?
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๐Ÿ’–๐Ÿ’„ Aoife โ™ฟ๐Ÿ’œ
@Aoiferocksitout
5 years
Who walks up to a stranger and asks for their medical history? #AbledsAreWeird
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๐Ÿ’–๐Ÿ’„ Aoife โ™ฟ๐Ÿ’œ
@Aoiferocksitout
4 years
My actual doctor called me tonight to cancel our appointment tomorrow. I was floored, we can't contact our Dr.s at my clinic. She said we could have phone sessions. I'm happy, but again why do we have to wait for a #pandemic for #accessibilities ?
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๐Ÿ’–๐Ÿ’„ Aoife โ™ฟ๐Ÿ’œ
@Aoiferocksitout
3 years
Is anyone else's body being exceptionally awful to them today?
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@Aoiferocksitout
๐Ÿ’–๐Ÿ’„ Aoife โ™ฟ๐Ÿ’œ
@Aoiferocksitout
7 years
Here are some senators you can call right now:
@womensmarch
Women's March
@womensmarch
7 years
Please RT: We need ALL hands on deck to #SaveACA . Call these senators right now & ask them to vote NO on the Senate health care repeal bill.
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๐Ÿ’–๐Ÿ’„ Aoife โ™ฟ๐Ÿ’œ
@Aoiferocksitout
2 years
White people, why are you all shocked about the white life lady? We've known who these people are forever and what values they stand for. We know they don't care about human lives, we know & many groups of people have been telling you! What are you going to do is the question.
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๐Ÿ’–๐Ÿ’„ Aoife โ™ฟ๐Ÿ’œ
@Aoiferocksitout
1 year
Posted a few things about how to look for signs of #ScarletFever , which is going around the US right now. #DisCo , #DisabilityTwitter , please be on the look out for signs in yourself and others around you. With all of the viruses going around right now, you don't want this one.
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๐Ÿ’–๐Ÿ’„ Aoife โ™ฟ๐Ÿ’œ
@Aoiferocksitout
1 year
Prior Authorizations for medications are cruel, unnecessary and cause patients harm. Just another part of our horrific healthcare system. I have beyond had it with Medicaid denying a med I've been on for years now. They told my Dr to try a different med & he needed to do a PA.
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๐Ÿ’–๐Ÿ’„ Aoife โ™ฟ๐Ÿ’œ
@Aoiferocksitout
4 years
6 Where are all the pieces about coping with living at home written by #disabled people who live like this all the time? @teenvogue ? @R29News ? Anyone? We are literally experts on this and there are plenty of great disabled writers out here. Hire us!
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@Aoiferocksitout
๐Ÿ’–๐Ÿ’„ Aoife โ™ฟ๐Ÿ’œ
@Aoiferocksitout
2 years
PSA of the day, especially for those of you who call yourselves leftists: When someone says something you don't agree with, the other person is not a psyop, a fake comrade, et al. Also daily reminder that if you don't even remember disabled people exist, you lack solidarity.
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๐Ÿ’–๐Ÿ’„ Aoife โ™ฟ๐Ÿ’œ
@Aoiferocksitout
3 years
If you don't have #diabetes and are not a medical professional who works with diabetes, don't spread misinformation about it. Feel free not to blame people with type 2 diabetes for things that can't always be fixed with diet and exercise for everyone. Insulin should be affordable
@bigfatsurprise
Nina Teicholz, PhD
@bigfatsurprise
3 years
Diabetes is bankrupting people. Meanwhile, cutting out carbs is zero cost and frees people from the need for insulin usually within days-weeks. Diabetes associations don't tell ppl this bc they're funded by Big Pharma. That's it, the whole sad story.
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๐Ÿ’–๐Ÿ’„ Aoife โ™ฟ๐Ÿ’œ
@Aoiferocksitout
5 years
This is another example of lack of #accessibility in newly renovated @MTA subway stations. No elevator and this is what #disabled , elderly and pregnant riders are supposed to use in lieu of benches. All to punish homeless people. #DisabilityRights #HousingRights #Disability
@wb_thorne
Will
@wb_thorne
5 years
Can't sit down after teaching for hours just because someone wants to punish the homeless. Just the worst.
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๐Ÿ’–๐Ÿ’„ Aoife โ™ฟ๐Ÿ’œ
@Aoiferocksitout
5 years
We are more likely to be living under the poverty level than abled people. We are more likely to be sexually assaulted than able people. We are left out of these conversations, unless we start them. #ThingsDisabledPeopleKnow
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๐Ÿ’–๐Ÿ’„ Aoife โ™ฟ๐Ÿ’œ
@Aoiferocksitout
4 years
3 It would be great if, when this is over, non-disabled ppl realize the challenges and difficulties #disabled ppl who can't leave the house face. Help us with errands,resources,company. Stop acting like we're doing this for fun. As you can see, it's not fun!
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๐Ÿ’–๐Ÿ’„ Aoife โ™ฟ๐Ÿ’œ
@Aoiferocksitout
3 years
Like many of you #disabled and #ChronicallyIll friends out there, there are some times when I can't take it anymore. I'm sick of being in extreme pain 24/7, I'm sick of the other symptoms that keep me from functioning day to day. #Disability #ChronicPain #ChronicIllness
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๐Ÿ’–๐Ÿ’„ Aoife โ™ฟ๐Ÿ’œ
@Aoiferocksitout
5 years
I'm alive today because I had an abortion. For me, it was another part of #TheCostOfBeingDisabled . I'm alive, though. Again, what is a life worth, what are our lives worth? #youknowme #AbortionIsNotACrime #DisabilityRights #ReproRightsAreHumanRights
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๐Ÿ’–๐Ÿ’„ Aoife โ™ฟ๐Ÿ’œ
@Aoiferocksitout
4 years
2 #Disabled ppl who can't get out have always been called lazy, mooches, we're just on vacation, we're lowlifes because we might need to rest during the day. We're sitting on the couch eating bon bons. Is that what you all are doing now that you need to stay at home? I doubt it.
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๐Ÿ’–๐Ÿ’„ Aoife โ™ฟ๐Ÿ’œ
@Aoiferocksitout
4 years
1 Firstly, I absolutely empathize with every non-disabled person staying at home right now. It's not fun at all, it's not a vacation. It's isolating and not so great for one's mental health. When was the last time you read a piece about this from a homebound #disabled person?
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๐Ÿ’–๐Ÿ’„ Aoife โ™ฟ๐Ÿ’œ
@Aoiferocksitout
2 years
I am disabled. An abortion saved my health and possibly my life. Even if I wasn't in this situation and decided on abortion...not an easy decision btw, I still have the right to have one.a Abortion is a disability issue! #DisabledAndProChoice
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๐Ÿ’–๐Ÿ’„ Aoife โ™ฟ๐Ÿ’œ
@Aoiferocksitout
2 years
Do I feel badly that Sia was suicidal after the backlash for Music? Yes. Do I feel just as badly for the autistic person originally slated to play Music who was tossed away because Sia didn't couldn't handle working with an autistic lead? Oh yes. I feel for the ppl she harmed.
@PopCrave
Pop Crave
@PopCrave
2 years
Sia reveals she was suicidal and went to rehab after the backlash to her controversial โ€˜Musicโ€™ film. ๐Ÿ”—:
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๐Ÿ’–๐Ÿ’„ Aoife โ™ฟ๐Ÿ’œ
@Aoiferocksitout
3 years
Losing two chronically ill friends in a couple of days over a month.... I can't explain. Other friends think they are on the way. I love you all, please be extra good and kind to each other. I hate this part of chronic illness life, I know you do too. DMS open if you need.
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๐Ÿ’–๐Ÿ’„ Aoife โ™ฟ๐Ÿ’œ
@Aoiferocksitout
2 years
@kathygriffin @EricMGarcia Eric may be a man, but your assumptions are off I know Sia is your friend and you care about her. Please understand she did a lot of harm to the autistic community with every single step of the Music project. Please listen to all of the Autistic people who are speaking on this.
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๐Ÿ’–๐Ÿ’„ Aoife โ™ฟ๐Ÿ’œ
@Aoiferocksitout
5 years
#Disability PSA of the day: When I got my hair trimmed last week,my stylist grilled me about why there is nothing to be done for my chronic illnesses, not knowing anything about them. I told her I didn't want to try one invasive treatment with no guarantees & she got all shouty.
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๐Ÿ’–๐Ÿ’„ Aoife โ™ฟ๐Ÿ’œ
@Aoiferocksitout
4 years
7 Remember #disabled ppl who live like this when this #pandemic is over. Remember us when you can go back outside. Remember how much help you needed and help those ppl living like this in your communities. #Homebound #StayAtHome #DisabilityC19 #Disability FIN
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@Aoiferocksitout
๐Ÿ’–๐Ÿ’„ Aoife โ™ฟ๐Ÿ’œ
@Aoiferocksitout
6 years
Abled people, stop being the #disability police in the parking lot, you can't tell who is #disabled and who is not by looking at them. Stop doing this to people. We shouldn't be going through this every single day. It's hardly this one case.
@everydayspoonie
Ali
@everydayspoonie
6 years
i honestly can't take this. as a invisibly disabled person with an accessible parking permit, this... no. not okay. never going to be okay. ๐Ÿ˜ญ
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๐Ÿ’–๐Ÿ’„ Aoife โ™ฟ๐Ÿ’œ
@Aoiferocksitout
3 years
Update 2: My person at patient services who handles my clinic issues is working on this. Therapist has offered to tell whoever needs to know what MH diagnoses I do have. I have to send in a form, hopefully will hear back about this next week. Comments are now visible in my notes.
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@Aoiferocksitout
๐Ÿ’–๐Ÿ’„ Aoife โ™ฟ๐Ÿ’œ
@Aoiferocksitout
1 year
It's been a while since I took a photo of myself. Here is a curly hair mirror picture! I'm trying to make the best of a hard day. #DisabledAndCute #DisabledCutie #Disability
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@Aoiferocksitout
๐Ÿ’–๐Ÿ’„ Aoife โ™ฟ๐Ÿ’œ
@Aoiferocksitout
11 months
Please share widely! Please help our beloved @Tinu get to California, where she will have better access to chemo! We cannot lose her! Please be here #ForTinu ! ๐Ÿ’–โค๏ธ๐ŸŒˆ๐Ÿฆ‹๐ŸŒŸ๐Ÿ’–โค๏ธ Fundraiser by Tinu AP : Tinu's Cancer Tx Journey: From Texas to California
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Tinu's Cancer Tx Journey: From Texas to California, organized by Tinu AP

As some of you may know Tinu's cancer battle took a turn for the worst in Mโ€ฆ Tinu AP needs your support for Tinu's Cancer Tx Journey: From Texas to California

www.gofundme.com
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@Aoiferocksitout
๐Ÿ’–๐Ÿ’„ Aoife โ™ฟ๐Ÿ’œ
@Aoiferocksitout
7 months
The best news! The misdiagnosis is officially out of my medical records! No asterisk, it's completely gone! I cannot begin to describe the absolute grief this caused me and I'm so grateful it's over. Self-advocation is so important and I had to learn it over decades.
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@Aoiferocksitout
๐Ÿ’–๐Ÿ’„ Aoife โ™ฟ๐Ÿ’œ
@Aoiferocksitout
4 months
Who relies on emergency exit gates to exit any station? #Disabled people with mobility and accessibility aids, people with children in strollers, people who are encumbered. My station just became accessible literally about a month ago. @MTA what are you doing to your riders?
@Gothamist
Gothamist
@Gothamist
4 months
Emergency exit gates at three subway stations will soon take 15 seconds to open, MTA officials announced Monday, as part of an effort to crack down on the โ€œsuper highway of fare evasion.โ€
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@Aoiferocksitout
๐Ÿ’–๐Ÿ’„ Aoife โ™ฟ๐Ÿ’œ
@Aoiferocksitout
1 year
Hey fellow Jewish people. Please be aware this Saturday in honor of Shabbat, some neo-n*zis have declared a day of hate. Be more alert than usual if you are going to shul, going for a Shabbat walk, doing non-shomer things like going to the store. Don't let it ruin your day.
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@Aoiferocksitout
๐Ÿ’–๐Ÿ’„ Aoife โ™ฟ๐Ÿ’œ
@Aoiferocksitout
1 year
My heart is heavy. My elderly psychiatrist is in the hospital with covid & covid complications. It does not look good right now. He's such a good doctor and a kind person. Not sure what will happen to me, but I pray he will be alright and not be in agony.
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๐Ÿ’–๐Ÿ’„ Aoife โ™ฟ๐Ÿ’œ
@Aoiferocksitout
1 year
I had a good birthday! I also celebrated last weekend and am celebrating again this weekend ๐Ÿฅณ. I feel very much loved this year and am grateful to everyone who gave me birthday wishes ๐ŸŽ‚ . This pic is from last weekend
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๐Ÿ’–๐Ÿ’„ Aoife โ™ฟ๐Ÿ’œ
@Aoiferocksitout
7 months
Good news: My misdiagnosis is one step from being removed from my records. Please send good thoughts and vibes. Hoping it will happen sooner rather than next month.
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@Aoiferocksitout
๐Ÿ’–๐Ÿ’„ Aoife โ™ฟ๐Ÿ’œ
@Aoiferocksitout
3 years
Non- #Disabled people, stop telling us what to call ourselves. Stop telling parents of disabled children to call them anything else but disabled. We are not handicapped, crippled and we should never be referred to as "special needs". Disabled. It's not a bad word. Learn this.
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๐Ÿ’–๐Ÿ’„ Aoife โ™ฟ๐Ÿ’œ
@Aoiferocksitout
4 years
@tashakaminsky She's always been one of my favorite heroes of the Shoah. People are not taught about Jewish resistance if they are even taught about the Holocaust. How do you teach about Auschwitz and not mention inmates worked together to blow up a few krematoria??
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๐Ÿ’–๐Ÿ’„ Aoife โ™ฟ๐Ÿ’œ
@Aoiferocksitout
5 years
Flaring hard today,so PSA of the day: #Disabled friends & friends living w/ #ChronicIllness / #ChronicPain ,don't beat yourself up if you need to stay in bed a little longer some mornings. Your well being means more than anything else. Let's rewrite that ableist script in our minds
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@Aoiferocksitout
๐Ÿ’–๐Ÿ’„ Aoife โ™ฟ๐Ÿ’œ
@Aoiferocksitout
4 years
#PSA of the Day: I don't know who came up with 'special needs', but it seems like the term was created for abled people who are uncomfortable calling #disabled people disabled. Abled friends, #Disability is not a bad word. Disabled is not a bad word.
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๐Ÿ’–๐Ÿ’„ Aoife โ™ฟ๐Ÿ’œ
@Aoiferocksitout
3 years
via @GilmerHealthLaw
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Trauma Informed Care Interview on KERย Cast

I had the pleasure of joining Victor Montori to talk about trauma informed care (TIC) for the Mayo Clinicโ€™s Knowledge and Evaluation Research (KER) Unitโ€™s KERCast series. You can find tโ€ฆ

healthasahumanright.wordpress.com
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@Aoiferocksitout
๐Ÿ’–๐Ÿ’„ Aoife โ™ฟ๐Ÿ’œ
@Aoiferocksitout
3 years
Yes, everyone and their grandmother on #DisabilityTwitter have fundraisers. People shouldn't be harassed for this. A Thread. ๐Ÿงต
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๐Ÿ’–๐Ÿ’„ Aoife โ™ฟ๐Ÿ’œ
@Aoiferocksitout
1 year
Dad update: Something happened during the endoscopy. He's in the ICU, on a ventilator. Waiting for more updates from my stepmom. Please do not tell me what to do in this situation, that's between me, my dad and stepmom. Please do pray and send them good thoughts. โค๏ธ
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๐Ÿ’–๐Ÿ’„ Aoife โ™ฟ๐Ÿ’œ
@Aoiferocksitout
6 years
5) I wish I could "do nothing" all day, and take naps. No, you do not. Daily tasks can be challenging for some #disabled people. It is very difficult for me to just shower, and doing this daily is very hard. We have things to do like you. Not everyone gets to rest.
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๐Ÿ’–๐Ÿ’„ Aoife โ™ฟ๐Ÿ’œ
@Aoiferocksitout
4 months
Please share widely! Please keep helping @SFdirewolf @pipagaopoetry & @thellpsx with the eSIMS for Gaza project! Let's keep lines of communication open for these people who have no water, food, electricity or proper shelter in winter! Never again is now!!
@SFdirewolf
Alice Wong ็Ž‹็พŽ่ฏ
@SFdirewolf
5 months
๐Ÿ‰ Itโ€™s been over a hundred days of relentless genocide in Gaza. Hereโ€™s the latest update from Crips for eSIMS for Gaza, a project in partnership withย  @pipagaopoetry ย andย  @thellpsx ! We raised enough money so far to purchase 1500 eSIMS! #AltTextPalestine #FreeGaza #FreePalestine
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๐Ÿ’–๐Ÿ’„ Aoife โ™ฟ๐Ÿ’œ
@Aoiferocksitout
4 years
5 There are plenty of activities that non- #disabled ppl can do that people like me cannot do. If you are able, exercise to help w/ anxiety, make home cooked meals or bake things. I can't do either of these things, not even simple meal prep. Be thankful you can do these things.
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๐Ÿ’–๐Ÿ’„ Aoife โ™ฟ๐Ÿ’œ
@Aoiferocksitout
1 year
Dad has taken a turn for the worst. Please pray, please send good thoughts,he needs them now. I said what might be my last I love you to him but I couldn't say goodbye.
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๐Ÿ’–๐Ÿ’„ Aoife โ™ฟ๐Ÿ’œ
@Aoiferocksitout
4 years
I have worth. My life matters. I am fortunate to mean a lot to the people in my life. I dedicate myself to helping others however I am able. I'm #Disabled and am not disposable. Abled people, do tell, what makes you more important than the rest of us? #AreYouDisposable
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๐Ÿ’–๐Ÿ’„ Aoife โ™ฟ๐Ÿ’œ
@Aoiferocksitout
6 months
Not really okay right now. Got some horrific news last night, still reeling. I'm personally safe and okay, it's not anything like that. Give the people you love in your life some extra love today. Keep shining your light in this messed up world, because we all need each other.
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๐Ÿ’–๐Ÿ’„ Aoife โ™ฟ๐Ÿ’œ
@Aoiferocksitout
5 years
If you are a nurse who thinks like this, or the other nurses who responded to all of this mess, consider another profession. One that requires no interaction with other human beings. Also, chronic pain patients are people.
@ERshitmagnet
ER ๐Ÿ’ฉ Magnet, BSN RN CEN
@ERshitmagnet
5 years
Today may be Christmas but the ER isnโ€™t Santa and we arenโ€™t going to fulfill your wishlist of narcotics Sorry to burst your bubble but Santa ainโ€™t real
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@Aoiferocksitout
๐Ÿ’–๐Ÿ’„ Aoife โ™ฟ๐Ÿ’œ
@Aoiferocksitout
2 years
#KnivesOutSpoonies Being disabled or chronically ill is not a result of moral failure or not living well. It's not something people can control. It doesn't make you bad, less than, worthless, useless, or any of the other things you call us. 80% of ppl become disabled. It's life.
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๐Ÿ’–๐Ÿ’„ Aoife โ™ฟ๐Ÿ’œ
@Aoiferocksitout
6 years
Again #Medtwitter , when you write something here, anyone can see it. We know some of you have your private groups, but this is ridiculous. You wonder why so many patients do not trust #HCPs . #Disability #chronicillness #ChronicPain #chroniclife #Spoonie #MedicalTrauma
@henryhammerbeck
Henry
@henryhammerbeck
6 years
An absolute horror show.
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๐Ÿ’–๐Ÿ’„ Aoife โ™ฟ๐Ÿ’œ
@Aoiferocksitout
2 years
Do not assume that people can "just flee" from a situation like what is happening in Ukraine. Do not blame people for not leaving because they are not able. Sometimes people can't move when they need to, nor are they able to flee when they need to flee.
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๐Ÿ’–๐Ÿ’„ Aoife โ™ฟ๐Ÿ’œ
@Aoiferocksitout
5 years
If it was her, she would do it in a second! No thoughts, she would try it. Absolutely! For the love of all that is beautiful in this universe, please do not engage in this type of #Ableist nonsense with #disabled people. Do not.
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๐Ÿ’–๐Ÿ’„ Aoife โ™ฟ๐Ÿ’œ
@Aoiferocksitout
3 years
Please RT! Are you allergic to adhesives? What do you do when you need IVs, go to the ER, et al?
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@Aoiferocksitout
๐Ÿ’–๐Ÿ’„ Aoife โ™ฟ๐Ÿ’œ
@Aoiferocksitout
4 years
This was Christmas! #DisabledAndCute #DisabledJoy #DisabilityStyle
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๐Ÿ’–๐Ÿ’„ Aoife โ™ฟ๐Ÿ’œ
@Aoiferocksitout
4 months
On Holocaust Remembrance Day add me to the list of grandchildren of Holocaust survivors who have been standing up and speaking out against the genocide carried out in our names against the Palestinian people. Never again has been going on for over three months. Stand up!
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@Aoiferocksitout
๐Ÿ’–๐Ÿ’„ Aoife โ™ฟ๐Ÿ’œ
@Aoiferocksitout
5 years
First, do not ask #disabled people for their medical history. It's not like talking about the weather. If you don't know about someone's health condition and don't even know how to spell it, keep your opinions to yourself about it.
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๐Ÿ’–๐Ÿ’„ Aoife โ™ฟ๐Ÿ’œ
@Aoiferocksitout
2 years
Where to start with #KnivesOutSpoonies Let's see, writing an article about chronically ill and disabled women having an online community like that's a bad thing is getting it wrong. Chronic means chronic and it & symptoms don't go away.
@Imani_Barbarin
What do Ableds conveniently get wrong about chronic illness in order to turn a profit, prop up supremacy culture, or just to be an asshole? Use: #KnivesOutSpoonies
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๐Ÿ’–๐Ÿ’„ Aoife โ™ฟ๐Ÿ’œ
@Aoiferocksitout
6 years
Her name is #TheresePatriciaOkoumou ! Is there a fundraiser for her bail & legal defense yet?
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@Aoiferocksitout
๐Ÿ’–๐Ÿ’„ Aoife โ™ฟ๐Ÿ’œ
@Aoiferocksitout
8 months
No matter how you feel about Palestine or Israel, the humanitarian crisis going on is horrific. Do what you can do help out...give to org.s helping out if you are able, contact elected officials, do work to help online or safely in-person. Take breaks from the news & social media
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@Aoiferocksitout
๐Ÿ’–๐Ÿ’„ Aoife โ™ฟ๐Ÿ’œ
@Aoiferocksitout
3 years
@BusyPhilipps Unfortunately, it happens to disabled people all the time.
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๐Ÿ’–๐Ÿ’„ Aoife โ™ฟ๐Ÿ’œ
@Aoiferocksitout
7 years
I'm not staying silent as a #Disabled woman on #WomenBoycottTwitter day, and here's why: A Thread
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@Aoiferocksitout
๐Ÿ’–๐Ÿ’„ Aoife โ™ฟ๐Ÿ’œ
@Aoiferocksitout
6 years
I'm "muggle sick". Again, ppl with #chronicillness / #ChronicPain should not be allowed to get things like colds, & the flu. We have enough awful to deal with 24/7 Much love to anyone else who is #MuggleSick today. <3
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๐Ÿ’–๐Ÿ’„ Aoife โ™ฟ๐Ÿ’œ
@Aoiferocksitout
6 years
4) I know someone with a #disability , or #illness , they suffer more than you, and do more than you. Do not compare ppl,you wouldn't do this otherwise. Don't do it to #disabled ppl. There is no Suffering Olympics. You are not an expert in anyone's disability or illness.
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๐Ÿ’–๐Ÿ’„ Aoife โ™ฟ๐Ÿ’œ
@Aoiferocksitout
4 years
My cousin passed away yesterday and I found out another cousin of mine passed away earlier this year. If you have a chronic medical condition please get the routine care you need right now, if you are able. Please take care of your hearts.
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๐Ÿ’–๐Ÿ’„ Aoife โ™ฟ๐Ÿ’œ
@Aoiferocksitout
2 years
I don't want the man who said he felt bad for hot people in wheelchairs hosting Jeopardy. I don't really want the woman who suggested people who don't follow modesty dress rules are the ones who get sexually harassed, are victims of SA, et al either. They could have done better
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๐Ÿ’–๐Ÿ’„ Aoife โ™ฟ๐Ÿ’œ
@Aoiferocksitout
7 months
Trying to cheer myself up on this first thanksgiving without Dad. If you are struggling today I see you. โค๏ธ
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