In part 2,
@doctorasadkhan
and I ask
@WesElyMD
about how he treats Long Covid patients, what other treatment trials he'd like to see happen, and what we can learn from ME/CFS.
@gezmedinger
@doctorasadkhan
@WesElyMD
He understands that LC is multi faceted, diff things will work for different people. He even mentioned the P word, psychologists, yes they benefit some people. Unfortunately any Wes in the NHS would probably be squashed. As Jesse Jackson said "keep hope alive".
@gezmedinger
@doctorasadkhan
@WesElyMD
Oh wow. Part of the trauma so many 1st wavers have is doctors not helping or actually hurting us. I have PTSD around doctors because of this. Thank you
@WesElyMD
for talking about listening and learning. It brought me to tears. I hope other docs learn from you. Gives me hope.
@gezmedinger
@doctorasadkhan
@WesElyMD
This doctor needs to mentor as many future doctors as possible. Best attitude to have. Graciousness to admit past inadequacy the system created and mindset to move knowledge along for the benefit of patients
@gezmedinger
@doctorasadkhan
@WesElyMD
Thankyou so much . I’m uk . I wish I heard more doctors speak like that in the uk . The USA may find an answer to our LC but our country is slow to accept their research . It’s frustrating.
@gezmedinger
@doctorasadkhan
@WesElyMD
Thank you so much to all of you and thank you, once again, for bringing MECFS into the conversation. Such a relief after decades of neglect and still too much targeted opposition.
@gezmedinger
@doctorasadkhan
@WesElyMD
Thank you Gez and Asad. As a long time ( 40 years ME sufferer ) I’m glad to see some changing . I’ve become my own dr . Two best meds LDN and bizzairely Ritalin and propranolol. Recently eds diagnosis. So one subtype I realise . MCAS literature there
@gezmedinger
@doctorasadkhan
@WesElyMD
This will move slow…I can’t get a PET Scan on a patient with mild cognitive impairment until they are very impaired. No better than doing an autopsy.