Speaker. Storyteller. Sr. Dir.
@AbleGamers
. Creator
@NightlyQuestion
. Tony Stark without the cool suit. Advocate, but really just wants to advocate for naps.
On June 11th, Michael Hickson, a quadriplegic black man with COVID-19 was killed by a hospital in Austin Texas.
Doctors decided he had "no quality of life" and was not worth spending the resources to save.
The conversation between his doctor and his wife was caught on audio 1/?
Well, no. As a quadriplegic, I want AI.
I want AI to identify treatments for my terminal illness.
I want AI to reduce the workload on nurses.
I want AI to find cures.
I want AI to enable me to use robotic arms to give someone a hug since mine don't work.
I don't want AI to
nobody wants to play AI games.
nobody wants to read AI articles.
nobody wants AI assistance.
nobody wants AI artwork.
nobody wants AI voiceovers or characters.
nobody wants AI, period.
Pretty snarky take on a device that could literally enable a disabled gamer to play for the first time.
I would encourage you to expand your empathy, whoever is running Gizmodo socials.
For 15 years, I've been telling people how video games improve the quality of life for people with disabilities
But to really give the maximum effort, I asked my friend
@VancityReynolds
to help support the mission of
@AbleGamers
Will you join us?
I am so shook.
@Twitch
donating $1,000,000 to
@AbleGamers
is going to *literally* change the lives of thousands of people with disabilities.
To you who supported me, my work, AbleGamers, and our lofty dream of enabling everyone to play: Thank you
They did this because of you!
I've been stewing on this for a few days as I try to come up with the right words to explain to you how much of an underlying fear this scenario is for much of the disabled community.
We live our entire lives in fear that one day a doctor will decide we just aren't worth it.
Sub vs. Dub
Subtitles are an accessibility feature for the Deaf and hard of hearing communities.
Dubbing is an accessibility feature for the blind and low vision communities.
Everybody's needs are important. That's it. That's the hot take.
As someone with a profound disability, it's disgusting to me that people are using the Americans With Disabilities Act of 1990 to justify avoiding a minor inconvenience
These badly misspelled cards & their card-carrying members are using disabled people as shields to harm others
Hi. I'm Steve. I'm a gamer who uses a power wheelchair, ventilator, & assistive technology. I've done my best to to be an advocate for accessibility in videogames
It'd mean a lot to me if you'd nominate me and RT. I want to show disability isn't a limter
In the YouTube video, the doctor can be heard saying "he will have lines and tubes coming out of his body... That's not a quality-of-life"
I have tubes coming out of my body. I happen to like my life. Without those tubes I'd be dead
Our definition of quality is vastly different
So, when you see me repeatedly yelling about masks, paying attention to disabled people, and you don't understand why I tweet with passion, remember this.
I'm fighting to change culture that doesn't see disabled life as quality. Many of us are afraid and rightfully so.
I'm on a ventilator. I am vulnerable.
My nurses use hand sanitizer before touching my ventilator to make sure I don't die. But supplies are out because people are hoarding ANTI-BACTERIA sanitizer to fight a VIRUS!
Your hoarding isn't saving you, but it might kill people like me
Doctor: So as of right now, his quality of life — he doesn’t have much of one.
Melissa: What do you mean? Because he’s paralyzed with a brain injury he doesn’t have quality of life?
Doctor: Correct.
--
Hickson was refused food or treatment for 6 days
I know this isn't what you want on your timeline. You want me to talk about games or advocate disability stuff.
But it's hard knowing that one day all the followers or contacts won't save me or disabled people I love from a doctor deciding disabled life isn't a good quality life
Final note: I apologize to anyone triggered by this. Please understand social media pressure is my greatest tool. Many people will look away given the option. But Michael deserved better, and those of us still fighting deserve better.
See disabled people. See our fight. Help us
The newest
@tiktok_us
trend is the
#autismchallenge
where users mock people with disabilities.
Let me be explicitly clear:
If you think this is funny, Fuck You
If you participate in the challenge, Fuck You
If you defend people participating, Fuck You
We doesn't need your hate.
DIFFICULTY level set to EASY is to make the game EASIER for people who
A) Have disabilities which make "normal" difficulty almost impossible
or
B) Prefer to focus on the story and not combat
Please stop writing articles complaining EASY is bad. Let people play how they want!
ter·ror·ism
/ˈterəˌrizəm/
noun
the unlawful use of violence and intimidation, especially against civilians, in the pursuit of political aims.
"the fight against terrorism"
Dear
@VancityReynolds
Please consider me for a minor role in Deadpool 3
I play Jaxson "Big Teddy" Tresbre - a street-wise, sarcastic bounty hunter in a power wheelchair who helps Wade with life advice and crime-fighting until they encounter his one true enemy: A set of stairs.
Before calling you, I will:
-Tweet you
-DM you
-Add you on Discord
-Game with you
-Write you a letter
-Fight a bear
-Pay your student loans
-Do your taxes
-Lick an alien
-Marry you
-Eat pineapple on a pizza
-Bless the rains down in Africa, personally
Then, I will call you.
Hey Twitter,
May 15 I'm officiating for my nurse of 10 years, Chris. In caregiver years that's a lifetime.
@jonnybernthal
is his favorite actor of all time and I'd love to ask him to do a video message for Chris' wedding, but I don't have that kind of reach
Would you help RT/@?
@jaketapper
Here's the clip
Thanks again to Jake for bringing this up. I look forward to Biden, Jake, and the world paying more attention to the needs of the disabled community. Thank you for recognizing our fight
And thanks to my friend Dali for getting the clip
Keep seeing this in response to Michael Hickson's murder. It's a fair question but it's one that our society is not ready to admit to ourselves:
Society does not treat disabled people as equals. It's harder to get attention on these issues, but that's why I use my platform
Everybody is tweeting about how great Brendan Fraser was as "his most famous role" in The Mummy.
But did you ever see him in Scrubs? If their masterful performance in that memorable story arc didn't break your heart and tap dance on its soul, I can't imagine what would.
PSA: "Reeeeee" is just as offensive as using the R-word. Its origins trace back to a meme making fun of the sound an autistic person was making when overstimulated.
If you use this in your emotes or everyday speech, please remove it. Together we can stop ableist language.
I'm honestly getting tired of repeating myself. So this is my last Twitter statement on this
People, influential people, journalists and the media outlets are making this confusing by continuing to use the language "easy mode" - Accessibility means options, not easy gameplay
🚨Warning🚨
I got a call from the Office of Voter Pick Up asking for me by name to see if my ballot was ready so they could come by to pick it up.
There is no Office of Voter Pick Up, & in Pennsylvania, it's illegal to drop off someone else's vote unless designated in writing.
You're a gamer if:
You enjoy easy mode
You play mobile games
You play once a month
You never finish games
You can't "get god"
You only play to be social
You need accessibility
You prefer casual games
You're a gamer if you have fun playing games.
No matter what anyone else says
Y'all,
I don't know how to get the importance of this across in a tweet.
The President of The United States Acknowledged Disability
I can't adequately express what that means
Unbeknownst to me, one of my nurses contracted COVID. We worked together in close proximity for 3 10-shifts
As of today, I'm out of the 14 day window. I have no symptoms & neither does anyone else. We dodged a bullet
They had a mask on. That's why I'm alive. Wear your damn mask
I couldn't be more honored to show you the list of this year's
@VGAAwards
presenters.
Tune in this Saturday, 2 PM Pacific, as
@Charalanahzard
& I host while trying to look as cool as these people.
Arizona is preparing to implement SCORECARDS to determine eligibility for receiving care in a COVID world with limited supplies.
The elderly & people with pre-existing conditions immediately fall into a lower category of priority due to life expectancy.
Normalize playing video games on the easiest mode.
Not because you're old.
Not because you're disabled.
Not because you haven't "Git Gud" enough.
Normalize playing on Baby Ass Baby Mode because you *WANT* to
Someone asked me yesterday why I feel passionate about raising money and awareness for disabled gamers.
As long as there are gatekeepers yelling with such righteous indignation that disabled people should simply learn to accept some content need not be accessible, I will fight.
Black Lives Matter
Trans Women are Women
The 2% Immunocompromised people are worth saving
Disabled People are Valid
-------------------------------
2020: The year we all decided to be controversial by openly caring for one and other
It's been the honor of a lifetime to be a
@thegameawards
Global Gaming Citizen
Growing up with a disability comes with a very unique set of challenges
My goal on this earth is to live as an inspiration to those with disabilities that not only can you survive, but you can thrive
I am very disheartened by my experience with
@helldivers2
. In order to play video games I use an infrared hat to relay movements I make with my head into keyboard presses. Helldivers 2 blocks the program from input. I have not met a game yet that blocks my hat, until now.
But
@tiktok_us
Did you expect me to be highbrow about this?
Not this time. THIS is the worst our culture has to offer. If you feel so bad about yourself that you have to mock disabled people to get likes and feel good about yourself, that says more about you than the people you mock.
Get Help
idk, man, I think you should be upset your favorite content creator is in an abusive, life-threatening relationship instead of mad you can't bang her because she has a husband.
Steve dedicated his life to animal conservation. He brought attention to animals who needed protection, and he taught a generation of children, including me, the value of all life. How each and every animal should be respected.
Thank you Google, for recognizing
#SteveIrwin
#SteveIrwin
was killed while harassing a ray; he dangled his baby while feeding a crocodile & wrestled wild animals who were minding their own business. Today’s
#GoogleDoodle
sends a dangerous, fawning message. Wild animals are entitled to be left alone in their natural habitats.
You'd be surprised how many times you face, and lose to, a disabled gamer like me.
I'm platinum overwatch. Hundreds of Fortnite/Pubg wins. Rocket league, etc.
But, if you ever want to try your luck, come find me on Twitch.
Much love
Thank you,
@PlayStation
.
I am honored by the gift and your words of dedication. To be recognized like this is an honor
The fight for accessibility never ends. But tonight I take a break to celebrate and play games.
Tomorrow, my
@AbleGamers
compadres, and I return to the battle
YES! He Just brought it up live on-air!! I'm not mentioned by name but he referred to it!
Thank you,
@jaketapper
PLEASE press remember us in your talking points. We are important and there are a lot of us. We need a seat at the table.
Hi,
I use a power wheelchair and a ventilator. On Friday, I got stabbed in the spine 6 times by a 6-inch needle for my treatment. I'm in a ridiculous amount of pain.
I got up today and went to my local polling place.
If you haven't done so yet, there's still time. GO VOTE!
How DARE you try to use the biggest piece of legislation to ever come along to help people with disabilities (that half the time still gets f*cking ignored) as some sort of "righteous sword of justice" so you don't have to *checks notes* put a piece of CLOTH on your face
F you
Hi Internet,
Today I turn 39. Not bad for someone with 2 terminal illnesses
Despite my best efforts, I'm still not on
@TheRock
's radar
As a birthday gift, would you tweet Mr. DJ and advise him why you believe he should grant me a follow?
It would mean a lot coming from you!
Dear
@Barbie
,
If you use part of your marketing money to give a $25,000 donation to
@AbleGamers
, I'll paint my wheelchair bright Barbie pink and keep it that way for all of my public speeches for the rest of the year.
Deal?
No matter what happens tonight on
#TheFinalEpisode
of
#GameOfThrones
, I'm thrilled Peter Dinklage was given this chance to shine. One of my favorite actors. He has given millions of kids (and adults) with disabilities around the world someone to look up to. Perseverance pays off.
I made you a video. No edits. No video magic. No celebrities. Just a conversation between you & me.
You have the power to help disabled people all around the world. Stream or donate, and use
#SpawnTogether
. Your support is what makes it all possible.
Hi Internet
A troll tried to make you mad by insulting video games which they think will make you accidentally promote their product with RTs
While trolls bash gamers, we (
@AbleGamers
) were setting up a hospital with tech to change lives
Ignore negativity
Promote positivity
Hey, stop scrolling for a second, please.
I know life feels hard right now. And it is. But life will always challenge us. And you're doing it. You're making it
Every single day you thought would destroy you, failed to break you
I'm glad you exist. Life is better with you in it
I don't know who needs to hear this, but if you're extremely empathetic, the world is downright f*cking exhausting right now.
That's it. No advice. Many usual coping methods aren't working right now. I'm just putting it out there for you to know you're not alone and I'm with you
@jaketapper
- Don't suppose you could mention this on-air? Not me, specifically, but at least talk about how the president of the United States mentioned including people with disabilities, not mocking us.
The world almost had one less Steve this week. What began on Nov 27 as mild cold symptoms turned into a full respiratory infection within 48 hours. The last time I went through something like this was 30 years ago & I ended up on a ventilator 24 hours a day. It was Frightening 1/
The ADA was designed to allow people like me to go to McDonald's without being tossed out for having the audacity to enjoy some chicken nuggets in public while being disabled.
It was not intended to help people who think wearing a mask takes away their masculinity spread a virus
So, what if I can't hold a standard book? What if I'm blind and need braille? What if I can't sit very long because of pain? I'm not really reading your book?
This is what ableism looks like. It's mocking people for using alternative methods to do things masquerading as a "joke"
"Animal Crossing is dead"
"Fall Guys is dead"
"Among Us is dead"
Let's stop being so eager to declare games dead. Every Single Game is one big streamer away from snowballing back into popularity.
It took Among Us over two years to catch their wave. There's a lesson in that.
I am honored to receive this award. The fight for accessibility has been hard-fought and there is so much more yet to do. I am so grateful for the continued privilege to represent people with disabilities. With persistence, sweat, and a few tears, you can achieve the unthinkable.
The Game Developers Choice Awards at
#GDC22
has named Steven Spohn, a driving force for accessibility in games and Senior Director of Development of the AbleGamers charity, as recipient of the Ambassador Award.
Ok, hackers.
When I woke up Monday, you had dropped Facebook.
When I woke up Tuesday, you had wrecked Twitch.
If I wake up tomorrow and you didn't destroy student loans I'm going to be mad.
To summarize, Niantic is doubling the cost of playing Pokémon GO remotely, and limiting how much you can play.
This is what we call a disability tax. If you can't leave your home or live in an inaccessible area, you can play, but it's going to cost you, and you can't play much.
Trainers,
We want to give you a heads-up about changes coming to Pokémon GO’s Remote Raid Passes. These changes are designed to rebalance the game and ensure it’s enjoyed by Trainers for years to come.
Learn more on our blog:
Dear Streamers,
When you begin a game for the first time, and you're exploring options for everyone to see, please do not skip the accessibility menu. Although you may not need accessibility, your viewers may be disabled gamers watching you to figure out if they can even play.
Hot take that shouldn't be hot: Don't judge people for playing the way they want to play.
You shouldn't be made fun of for playing a game on easy mode or hard mode. Games have modes so that people can play and enjoy the game in whatever way they have the most fun.
There's a lot of people talking about accessibility right now. But not for the right reasons.
The new Invincibility Mode from Double Fine is making a lot of people angry. So I decided to make a thread answering some of these from
@IGN
& beyond.
Let's go on a journey together!
The President of the United States just said "Don’t be afraid of Covid"
COVID-19 - a virus that has taken the lives of more than 208,000 Americans, and more than 1 million worldwide. A global pandemic
I'm so sorry the loved ones of those who have passed have to witness this
When you have a profound disability, people mocking your physical appearance is not uncommon.
Sometimes those turn into teachable moments. While streaming the other night, one of those moments appeared then carried over to twitter.
As Morpheus said, I can only show you the door
1 in every 1,900 babies is born with limb difference. 2.1 million Americans are missing one limb.
LEGO isn't affected by the "woke mind virus" - They're adding a toy for kids that looks like them or a friend or a parent.
Stop being ableist jerks.