@DiaryofaSickGrl
one time a dr tried to undiagnose me with eds after a geneticist diagnosed me bc he looked at the web md page after he had to google it and said i didn't look like someone who has it 🤡
@DiaryofaSickGrl
Arthritis. She said my hip joints have "Memories" of my past JA attacks and that's why they keep hurting, especially in bad weather, that it's completely in my head. Only did an x-ray not a MRI or CT scan needed to fully rule out Rheumatoid. So apparently I no longer have it.
@DiaryofaSickGrl
How many of you have had an injection with your MRI’s.
Look up gadolinium toxicity…here is a little secret they don’t tell you, it doesn’t all come out and it’s super toxic.
@DiaryofaSickGrl
Went to the ER, got told I had gallbladder issues and needed surgery but to follow up with a gastroenterologist first. Gastro told me I had “abdominal migraines” and should take migraine meds whenever I had an attack. It was in fact my gallbladder and surgery fixed the symptoms.
@DiaryofaSickGrl
It happened to me a couple years ago
I'm a rapid metabolizer of anesthetics, which means that stitches and dental procedures are awful. They need to use TONS of anesthetic, or none at all, and work fast
A few years ago, I finally had a GP who believed me, and she added it to my…
@DiaryofaSickGrl
Absolutely yes. EVERYTHING is caused by being overweight. I’m not arguing that I shouldn’t lose weight or that it’s healthy, but fat people get sick too.
Sore back? Lose weight. Add getting dizzy. Lose weight. Add a rash and debilitating fatigue. Lose weight. Add 6 months of…
@DiaryofaSickGrl
For 4 years I was having seizures. No one could find out why. A Doctor told my Ex and Best Friend that I was "faking to get some sympathy, maybe their attention". I lost both of them. 4 years later, emerg surgery, my sinus was pushing on my brain!
@DiaryofaSickGrl
Never tell a doctor what you 'have' they will immediately look for reasons why you don't. I stopped going after a while and figured it out for myself, when I went back for treatment, they told me I was wrong.
@DiaryofaSickGrl
I thought I'd get "un-diagnosed" with fibromyalgia after I got my EDS diagnosis. I'll admit I didn't fully understand it. But when I questioned it to the leading specialist who diagnosed my EDS, she explained that essentially years of living with chronic pain led to the…
@DiaryofaSickGrl
I got thrown in a mental hospital for refusing a blood test until they explained it to me. I got diagnosed with bipolar, instead of chrons disease. I spent 2 weeks in mental hospital with 0 treatments for chrons and a heavy dose of psych meds
@DiaryofaSickGrl
Yes. I was told to go to my primary physicians office (he wasn’t there) after an ER visit over the weekend. My primary’s office’s other doctor refused to give me the Rx the ER sent me to her for because she believed that the staff at the hospital, and the FOUR doctors (one was a…
@DiaryofaSickGrl
Yes, they tried to claim my musculoskeletal condition which can clearly be both demonstrated upon clinical presentation over decades, precisely seen on radiographic images (when the images are done properly), and ruled out by neurological and lab exams was due to CRPS or a…